I definitely didn’t see this coming but here we are
Just when I thought things were with school were going well, the bottom drops out and I'm scrambling to to figure this out.
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September 5, 2022
The only advice I have for parents dealing with loss
I'm having a hard time getting motivated today. The boys and I have been working on Minecraft together, and that was fun. I haven't got much else done though. As I'm writing this, it occurred to me that part of the issue is that every day, about this time, I was visiting my grandmother at her nursing home. I've been doing that for months. It had become such a huge part of my life, and I sort of built my schedule around seeing her. Now there's a void. Not only do I not get to see her anymore, but I also have the vacuum I need to fill with something else. Unusually I do pretty good with change, but this is a lot of adjustment, and it's only been a…
June 17, 2019
Don’t let Monday defeat you
Just a quick note before I get my day underway. I hope you all have a great Monday. I know that Monday's can be rough, Lord knows mine usually are. Try to focus on the positives and also remember to celebrate the victories. Please be kind yourself and remember that self-care is an important part of being a caregiver. Don't let Monday defeat you and have a great day. 😀
May 6, 2019
A Gentle Reminder: Don’t forget to focus on you
Gavin's struggles continue to increase, as do my constant levels of stress and anxiety. While it's not Gavin's fault, the constants associated with managing his behaviors is quite taxing, and considering I'm only human, it's essential I manage this stress the best I can. The reality is, being an Autism parent is among the toughest jobs any person can do. It's very rewarding and absolutely worth it, but it's in a category of challenge that exists unto itself. It's critical that I make self-care an absolute priority in my life. If I don't, I'll run myself into the ground trying to be everything for everyone and end up not doing any good for anyone. I wanted to remind my readers that it's not a bad thing to be selfish from…
April 16, 2019
How I deal with bad days like today
One of the things Autism parents have to frequently deal with is bad days. Good lord, I have plenty of those and I'm sure many of you can relate to that as well. If you can't, please share your secrets to life because I could definitely use them. 😉 While I won't go into my day, mostly cause I've already written about (see here), I do think it's important that share how I'm cooing with it. Some bad days are worse than others. Today was somewhere in the middle but it really got under my skin and I feel like I wasn't coping well. I was just sorta festering and that's never a good thing. I don't think I noticed it as much at first because I was going nonstop,…
April 2, 2019
Christmas can be rough for those like me with #Depression but I’m feeling pretty okay
When I originally started writing this post, it was just a basic update. As I was writing, it evolved a bit and will now serve a dual purpose. While this is still an update, I also wanted to share a bit about my Depression because it helps to remind or make people aware that Christmas can be hard for like me with Depression. Last night the boys spent the night with Lizze's parents. Lizze and I used that time to take care of a few outstanding Christmas related things. It's been a little while since I had some time off and I've been struggling with Depression a bit more than usual lately. When you're depressed, exhaustion is absolutely not your friend. For me personally, exhaustion makes it harder to fight…
December 23, 2018
As parents we have to be able to adapt to change in order for our kids with #Autism to do the same
Today is just another day in the long, storied tradition of our plans never working out. Last night, Lizze popped her right shoulder out of socket while she was sleeping. This happens every so often and anyone with even a more moderate case of Ehlers-Danlos can likely relate to joint slipping out of socket. It's incredibly painful and in Lizze's case, her shoulder tends to not completely pop out all the way. Think of it as a sliding glass door that has popped off the track. The door hasn't fallen out but it also grinds when you try to open and close it. That's sorta what her shoulders like right now. Originally, we were going to a Christmas party tonight and then her parents were going to take the boys…
December 22, 2018
Even on the truly awful days, it’s important to find the positive
I feel that it's important to be honest and transparent about where I'm at because it helps with context. It also shows how life can make the already difficult job of being an Autism/Special Needs Parent, way more difficult.
November 23, 2018