This is an unbelievably busy week

It's going to be a seriously busy week and it's going to involve a great deal of driving. Elliott has an appointment at Akron Children's Hospital in the morning. This is for a medication check with the behavioral health center. The drive will likely be longer than the actual appointment but it is what it is. On Wednesday, I'll be returning to Akron Children's Hospital again, this time with Gavin. He's got a follow up with gastroenterology. We've been waiting for this and I need to make this happen. On Thursday, Lizze has an appointment in the morning and on Friday, I'm back at Akron Children's Hospital once more for the boys. This is just a regular thing with their pediatrician. It's not a big deal but we still have…

0 Comments

Here’s what happened today

It's been a really, really long day but I think I'm finally done. Here's a couple notable things about our trip. Emmett's appointment went fine. Akron Children's Hospital never disappoints. We truly are lucky to live in proximity. The exam itself only took a few minutes and his old prescription wasn't that far off. He only needed a few minor adjustments and he'll be good to go. I suspect that Emmett may be very sensitive in regards to his vision. I don't know if it's a sensory thing or not but that would make sense. Anyway, we stopped at Walmart to both pick out and order his glasses. Insurance covers only $18 and we are not allowed to make up the difference. This means he will have a very cheap…

2 Comments

Emmett and I made it to the always amazing @AkronChildrens hospital for his eye appointment

Emmett and I battled horrendous traffic, while drinking dangerously hot - hot chocolate, in order to get to Akron Children's Hospital for his desperately needed eye appointment. Actually, traffic wasn't too bad today but the hot chocolate was seriously hot and Emmett does need new glasses in a very bad way. ☺ Anyway, we got here safely and it's now a waiting game. They're super busy and I just want to get this done. I'm so grateful we were able to get in sooner than next month. As soon as we get done, we'll stop and order his new glasses.

0 Comments

I heard back from 3 doctors this morning and it’s good news

First of all, I'll get to all the new comments but we're in a hurry this morning so it will have to wait. I just wanted to lay down a quick update because it seems like very positive news. I spoke with the eye doctors office in regards to Emmett's appointment today. I explained all that was going on and what we were concerned about. They said not to worry about it. We can bring Emmett in because he's asymptomatic, other than a runny nose and he's not running a fever. That's really good news. ☺ Within about 2 minutes of ending that call, I heard from Gavin's immunologist who said that as long as Gavin's on his IVIG Infusions, he should be in good shape. That's even better news.…

1 Comment

We got some insanely good news

I wanted to drop you a quick line to share a bit of insanely good news. Let's be honest, it's been a little while since I've had some really good news to share. Well, you can reset that counter because I have some good news to share. ☺ Yesterday morning or early afternoon, I got a call from Akron Children's Home Health. They were able to secure a month's worth of Gavin's IVIG Infusion medication. It's a bit different this month though. Rather than using two vials for his infusion, he'll need to use three. It's the same medication but in a different concentration. It's not a huge deal and an easy trade-off. Not only did they secure the medication, they even got it delivered the same day. Gavin was…

1 Comment