Read more about the article The struggles we face while raising a profoundly cognitively impaired adult son
Akron Children's Hospital / Autism Parenting Struggles / Gastroenterology / Gavin / My thoughts

The struggles we face while raising a profoundly cognitively impaired adult son

I spoke recently about some of the struggles we face while raising a profoundly cognitively impaired adult son. This morning presented me with yet another issue that was directly related to how Gavin handles things. When we were at his gastro earlier this week, there were a few issues that came up as a result of Gavin's limited capacity and poor memory. None of these things are his fault and while they would still be frustrating at times, it's his reaction to being questioned that is really frustrating. You can read the recent post about this appointment and the initial frustrations by clicking here. It wasn't until this morning that the other complications presented themselves. Gavin's doctor had asked about how he was doing with his Ensures. Gavin drinks one…

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November 16, 2018
Read more about the article Sometimes #Autism can be incredibly frustrating
Akron Children's Hospital / Gastroenterology / Gavin / My thoughts

Sometimes #Autism can be incredibly frustrating

It's been a very frustrating day. We had to totally adjust our plans because Elliott was home sick but we try very hard to roll with the punches. Autism and/or Special Needs parents have to be able to adapt because they living in a ery fluid environment. I was able to get Gavin to his appointment at Akron Children's Hospital but that ended up being frustrating as well. His gasteo is really nice and she's incredibly patient. ☺ I've spoken about this many times over the years but it bears repeating once again. Gavin is not a reliable source of information about anything, especially when it comes to his health. He struggles with memory issues and even basic comprehension. None of this is his fault but he very much muddies…

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November 15, 2018
Read more about the article Here’s why Gavin is returning to @AkronChildrens hospital today
Akron Children's Hospital / Gastroenterology / Gavin

Here’s why Gavin is returning to @AkronChildrens hospital today

We have our second out of town appointment today. This time it's for Gavin and it's with gastroenterology at Akron Children's Hospital. This is really just a follow-up because there's some lingering questions surrounding the results of his endoscopy and colonoscopy. I don't think it's anything serious but we need to discuss it. There are also some medication related changes we need to figure out as well. Gavin will also need his blood work done today. This trip to Akron will bring us really close to the time I need to pick up the kids after school. I think we'll be fine but we won't be able to afford any significant hangups. I would love it if we can walk out of this appointment with good news. Truthfully, it doesn't…

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November 14, 2018
Read more about the article He can go from zero to rage in no time flat
Akron Children's Hospital / Elliott / My thoughts / Psychiatry

He can go from zero to rage in no time flat

Elliott's appointment went pretty well. It was with the Behavioral Health Center at Akron Children's Hospital and it was also the first time we had really been to the new building. It's pretty amazing.. ☺ This trip was basically a followup and med check. Nothing new really happened and nothing has changed as far as medication is concerned. Elliott had a few tense moments because he became very frustrated. That's sorta what Elliott does. He goes from zero to rage in not time flat and his frustration threshold is very low. It was good that it happened because they were a there to witness some of the challenges he's dealing with first hand. Anyway, I took Elliott to get lunch and was kinda excited about that because he and I…

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November 14, 2018