Gavin Archives - Page 78 of 113

Should I be worried or proud?

Gavin and I were playing Minecraft tonight before he went to bed and this was the conversation we had about his latest mission today. This mission debriefing was a little concerning and a bit on the creepy side. Perhaps not listening to this with the kids in the room would be a better idea this time. The context of this mission involved someone in Gavin's world being murdered. Gavin was outraged by this act of violence and took it upon himself to return the favor as he put it. I don't know how to feel about this because the fact that he would want to murder someone, even in his world, is concerning. I worry about his thought process there but at the same time, when you hear what he ended up doing…

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November 21, 2016

Gavin / My thoughts

How my son totally impressed me today

After picking Elliott up from school today, Gavin and I took him with us to the grocery store. Elliott totally surprised me with how well behaved he was, so kudos to him. Gavin on the other hand, did something for the very first time. We haven't been grocery shopping for a little while so today was a big trip. After bagging everything, one cart became two carts worth of groceries. Considering I'm only one person, I had to rely on Gavin to push one of the carts out to the car. I'm always very careful with things like this because Gavin has almost zero awareness of his surroundings and I don't want anyone getting hurt and I can't afford to have him break anything either. Granted it…

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November 21, 2016

Gavin / Mission Debriefing / Schizoaffective Disorder

Heartbreak: A conversation with my schizophrenic child

Gavin suffers from a disorder known as Schizoaffective disorder. This is kind of a blend between bipolar disorder and schizophrenia. We see way more schizophrenic symptoms than we do bipolar anymore. Gavin has been in a state of psychosis for many months now and shows no signs of pulling out of it. The other night, Gavin and I were playing Minecraft together on the Xbox, as we do on most nights before he goes to bed. It's something he really enjoys and I can use the game to help teach him things that are harder to teach in real life. It's just become one of our things. While we were playing the other night, Gavin decided to share what had happened back at base. When I say back at base, it refers to…

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November 20, 2016

Gavin / My Crazy Life

It’s been a really rough morning

Today began way to early because Emmett climbed into our bed after a bad dream and essentially banished me. A bit later, he moved back to his room but then to the hallway where he likes to sit and play his tablet. The next thing that I know, he was delivering a message from Gavin. At some point last night, Gavin had experienced something very unpleasant.. I won't go into details but I will say that I don't know if this is just one of those things or if we need to worry about. Please keep Gavin in your thoughts and prayers. .

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November 20, 2016

Gavin / My thoughts

Something is happening to Gavin and it’s not good :(

Unfortunately, the news I have to share tonight is not of the positive kind. Over the last few days, Gavin has been experiencing a rather worrisome new symptom. What we're seeing could be related to his autonomic dysfunction, epilepsy, neuromuscular issues or childhood disintegrative disorder. It could also be completely unrelated to anything we currently know about and is instead something altogether new. Gavin has been losing control of his legs. What do I mean by that? I mean that he will be walking and then his legs just stop listening to his brain. That's actually how Gavin explains it. It's to the point that he's afraid to use the steps because he's afraid he'll fall. This is something that I need to speak to his pediatric neurologist on Monday…

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November 19, 2016

Gavin / My thoughts

It’s like being throat punched back into reality

Lizze and I made arrangements to take Gavin to see a movie this afternoon. The boys went to their grandparents for a few hours after school, in order to make this possible. I was really excited to have the three of us spend some time together outside the house and Gavin loves movies. As we were pulling into the parking lot of the theater, my heart sank. Gavin informed us that his friends are going to meet us there. We asked how they were going to pay for tickets. Gavin explained that he has a contact that works in the theater and that contact makes all the arrangements for his friends. I call them (but never to his face) his invisible group of super best friends because I have to…

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November 19, 2016

Bad News / Clozapine / Gavin

I have bad news about Gavin

As I shared earlier, Gavin had an appointment today with Dr.Reynolds, his psychiatrist for over an decade. The trip to this appointment was incredibly difficult for Gavin because his bladder issues were ramped up and causing him a great deal of distress. Thankfully he made it without incident.. His appointment went as well as it could, considering why we were there. We were there to both follow up on meds and discuss Gavin's current status. I'm going to try and make this short and sweet. We talked about how Gavin's delusions and hallucinations are as strong as ever. There isn't a significant difference between his status while on 600mg of Clozapine and what it is now while on 800mg of Clozapine per day. This is a scary thing for many…

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November 17, 2016

Gavin

Gavin was convinced he was bleeding from his eyes tonight

Earlier today, Lizze and I were catching up on the show Elementary. In this particular episode, they were trying to solve a murder that involved snake venom. The victims were bleeding from their eyes before they died. Gavin steped into the room as this happened and freaked out before walking back out. I didn't really think anything of it because Gavin freaks out over things like this all the time. He simply leaves the room and comes back later on. No big deal. Nothing else was said about this the rest of the day, until about an hour after bedtime. Gavin came downstairs, convinced he was bleeding from his eyes. He said that every time he closed his eyes, it felt like they were bleeding... This was pretty strange…

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November 16, 2016