Another Lego creation by Gavin

I've no idea what he's calling this particular masterpiece, but he built it while hanging out with my Mom the other day. She was kind enough to send me a picture and I'm sharing it with you. Gavin in loves sharing pictures of his Lego creations. The little dog next to him is Cleo, the dog I rescued after she was thrown from a moving car awhile back. She now calls my parents house home and is well loved. ☺ Feel free to leave a positive comment below. I'll pass them along to Mr. Gavin.. ☺

0 Comments

This is kinda weird

We learned something today from Gavin, that seems sorta strange. He made it a point to tell Lizze while I was gone, and then me while we were dropping off the boys lunches.

Gavin informed us that he has been taking showers while he’s hanging out with my parents on Wednesdays while the boys are in school.

It’s not so much that he takes a shower at my parents house, cause that’s not a big deal at all. It’s more about the way he talked about it. He said that he asks if he can take a shower and they let him. Again, not a big deal and my parents aren’t doing anything wrong.

What’s weird about it is he doesn’t need a shower. He does that at home and there’s no reason for him to be asking to take one.

(more…)

10 Comments

Gavin wasn’t feeling well

Gavin woke up this morning and not feeling well. He was complaining of a headache and a stomach ache. I'm not sure what was going in but he decided to have a very light breakfast, and then go to bed. He's been up and moving around for a little while. The nap seems to have helped him feel better. I don't know if this is related to his meds but it's possible. At the same time, headaches and stomach aches are pretty common for him anymore. Either way, he's feeling better now and at the end of the day, that's what matters.

6 Comments

A place for kids with life threatening health conditions

I thought it might be interesting to see where we will be staying in Florida, while Gavin has his biggest wish granted. We will be staying at a place called Give Kids the World. This is a place designed for kids with serious, life threatening health issues like Gavin. I looks like it's straight out of a fairy-tale book. Anyway, here's a satellite view from Google Earth. This isn't the whole thing but you get the idea. ☺

0 Comments

Is this the start of concerning behavioral problems?

We've been noticing some behavioral changes in Gavin over the last twenty-four to forty-eight hours. They were more subtle at first but have become more obvious as time passes. One of the things we've noticed is Gavin's memory is worsening. It could be nothing or it could be something. He's forgetting how to do some very basic things like setting up his IVIG infusion. He's been doing this for years but yesterday, couldn't remember some of the basic steps. This leads me to my next concern, frustration threshold. Yesterday, Emmett made a joke that was very benign. He asked Gavin what time it was and when he said 5 PM, Emmett sang the five dollar foot long theme from Subway. It's sort of an inside joke and Gavin can get…

0 Comments

A MAJOR Gavin update

It's been almost five days since we lowered Gavin's Clozapine to 500 mg/day. Aside from Gavin incessantly talking, I haven't noticed any changes in his behaviors. His Schizophrenic symptoms haven't changed for better or worse. The only things we've been hearing about are body aches and vision problems, but those shouldn't have enough anything to do with this particular change in medication. To be honest, I'd be comfortable dropping him down again before we leave for Florida. We're still going to wait but I don't foresee there being any changes in anything once we do. As I'm thinking about this, the only other concern we have taken place prior to any of these changes. On Tuesday night, Gavin briefed Dr Pattie and I on his latest mission. According to Gavin,…

18 Comments

Gavin is OFFICIALLY getting his wish granted

I received news tonight that we will officially be on our way to Florida at the end of the month. We've known for a little while that Gavin's wish was going to be granted, but we didn't know when we would be going for sure. People come from all over the world to stay at Give Kids the World. There were only a few slots open and we weren't sure we would be able to get in. We are now officially registered and our spot is reserved for us at the end of September.   The one big hang up that came up at the last minute had to do with transportation. They were going to rent us a car for the drive but we realized that we had to…

0 Comments

A major update about everything

It's already been a long day and an extra long week. Gavin and I just got home from grocery shopping today and we actually did pretty good. We ended up about six dollars under budget, and that's always a good thing. Gavin did pretty good as well. He did have a few episodes though but he's okay now. By episodes I'm referring things like vision problems and he popped both shoulders carrying a bag of ice. He seems to be doing fine now, and I'm grateful for that. Elliott's in a pre-teen kinda mood and it's frankly, a lot bit unpleasant. Emmett's doing okay but doesn't have a high tolerance for anything today. This means that he's very easily pushed over the edge. Needless to say, there's a lot of…

0 Comments