We’re becoming more concerned

This will be quick because I'm exhausted. I have a call into Gavin's psychiatrist because we learned that Gavin is waking up in the middle of the night to go on missions. This is very concerning because the last time we dealt with this, he was dealing with a voice he called his Lego boss. Lego boss was an asshole. He bossed Gavin around and would wake him up in the middle of the night to build Lego structures. He also tries to get him to do bad things. He's not real, but at the time, to Gavin he was. He hasn't said anything about his Lego boss returning, but something is waking him up in the middle of the night and making him do things. We need to turn…

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Something is very very wrong

We had kind of a weird night last night. I was being interviewed on a podcast called, Daddy Unscripted and it went on for much longer than was initially planned. It was a fantastic conversation and one that I can't wait to share. By the time I was done, I wasn't up to writing, so I'm playing catch-up today. Elliott and Emmett are in the middle of State testing. Lots of fun. We're all existing in a house, full of stress and anxiety that State testing tends to bring my kids. I feel like they're handling things quite well and while Elliott struggled to fall asleep last night, both boys are doing great. They usually do very well on State testing, and there's no reason to expect anything different this…

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Watching my son come unglued is awful

It's been a weird day, filled with Gavin related challenges. Lizze and I spoke at length this morning, and we both feel like Gavin is coming unglued. That's not meant in a derogatory way. We're both freaked out a little bit because there was serious doubt that the Clozapine was actually doing anything anymore and it's now quite clear that it was holding back the tidal wave of hallucinations. It's important to understand that as bad as things are getting for him in this area of his life, we do not see anything that warrants safety concerns for anyone around him. Announcing that he's a God is worrisome, but he's still a good guy, battling evil and not going dark if that makes sense. We would need to be more…

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It’s heartbreaking and a bit scary

The boys had a great day at school today, and in the way home, we stopped to visit my grandmother. We had a short visit before returning home blah blah blah. Not to downplay the significance of the above paragraph but what I want to focus on tonight is what came out of therapy tonight. This is specifically in regards to Gavin. Gavin was pumped and ready to tell us all about the missions he's been on over the last couple of days. This shouldn't be anything new or shocking to you, especially if you're a long time reader. Gavin is Autistic and Schizophrenic among other things. As a result, he experiences things that only he can experience. In other words, he sees and hears things only he can see…

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The hallucinations may be getting worse

Gavin's becoming more and more involved in his imaginary worlds. I don't know if he's having more hallucinations or if he's more vocal about them. We don't know what's what right now. He's officially off the Clozapine, and the half-life is pretty short, so it's moving its way out of his system. While this potential increase in schizophrenic symptoms is concerning, it's more annoying than anything else. I say annoying because he's talking about it a lot and that gets old. His hallucinations aren't getting darker or more violent, and that's a good thing. He wants to fill Dr. Pattie in on all his adventures at therapy tonight, and I think that's a great idea. Once the dust settles, we'll have a better idea about adding a different antipsychotic, but…

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It’s been a really, really long day

It's been a long day here in The Autism Dad household. We had Gavin to the Cleveland Clinic, and he ended having a surprise EEG. His doctor is concerned about his level of confusion, and I guess this will provide him with some insight. Gavin did great, but we won't have the results back for a little while. His lab work is trickling in though, and there are some abnormalities, but it doesn't look to be anything crazy serious. I'm sure if there's a problem, they'll let us know. The rest of the day was pretty standard. I'm heading to bed because I'm exhausted and Emmett has his Martial Arts tournament in the morning. It's about 45 minutes away, and it's going to blast most of the day. Emmett is…

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Unexpected testing at the @ClevelandClinic for Gavin

Alright. We made it to the Cleveland Clinic right on time this morning. Traffic was very cooperative, and that always makes things a bit easier. Gavin's appointment went pretty well but based on what we see at home in regards to confusion; his neurologist got him in for an EEG right away. We need to know if something is wrong, but it's also a convenience thing as well. We're already here, and if they can get us in, it saves a return trip. It also gets the results to his doctor right away. Gavin just went back, and we have about 90 minutes to sit here and wait. Hopefully, everything will be normal or at least typical for him. I'm exhausted and starving, but it's going to be a little…

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My son with #Autism and #FragileHealth is back at the @ClevelandClinic today

The boys got off to school okay. Emmett had another rough start, but he got through it. Lizze and I are left a bit frazzled, but he was feeling better when he walked into the school.😀 We have a day of driving ahead of us. Gavin has to be at the Cleveland Clinic for a visit with his neurologist. It's one of those frustrating appointments, only because it will be a 3-hour drive for a 15-minute consult. His doctor is fantastic, and it's essential that we get him there. It's just a lot of driving in a car that's not doing well. Anyway, with any luck, well be back in time to get the boys from school. If we're not, Lizze's Mom will grab them for us, and we'll pick…

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