Gavin Archives - Page 14 of 113

After tonight’s events, we have 3 major concerns

With everyone being sick and by everyone I mean Elliott and Emmett, it was just Gavin at therapy tonight. I'm at a loss as to how to describe what took place while we were there. That sounds ominous, and it's not really anything like that. Gavin had been anxiously awaiting the appointment because he wanted to update both Dr. Pattie and myself on the day's adventures. What ended up happening was Gavin spent an hour, rambling on about the recent code z stuff I was talking about this morning, along with a ton of other things. The themes of these missions were all good vs. evil. I'm a little concerned about the violent nature of some of his actions on these missions. I'm actually quite a bit concerned by some…

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April 17, 2019

Code Z

Another day, another psychotic episode. Last night, Gavin came running into the living room and was visibly upset. He began nervously pacing back and forth before blurting out code z. I wasn't paying close attention to what he was saying because he's psychotic and saying all kinds of crazy things. I don't mean that disrespectfully but instead it's literally what's happening in my house right now. After he began shouting code z - code z, I was concerned about his little brothers hearing him, so I calmed Gavin down and asked him to explain to me quietly what was going on. Even paying meticulous attention to his words left me struggling to follow what the hell he was talking about but here's what I gathered. Code Z stands for Code…

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April 17, 2019

Autism Parenting Struggles / Gavin / My thoughts

Every day it seems there’s more to worry about

It's been a chaotic day for me. Elliott was home sick, Lizze isn't feeling good, and Emmett is struggling in his own way. Don't even get me started on Gavin. Today brought to light a new concern in regards to Gavin. When we were at his neurologist a week or so ago, he weighed 137 lbs. That was progress in our efforts to help him gain weight. I noticed yesterday, when I was trying to help him with his infusion, he has almost no body fat. It's so difficult to do these infusions because the subcutaneous needles end up hitting muscle. Not only is that painful but I think it's also contributing to the issues with the infusion sites always leaking. This morning I had Gavin step on the scale,…

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April 17, 2019

Common Variable Immunodeficiency / GAMMAGARD / Gavin / Immunology / IVIG Infusion / My thoughts

Gavin had a massive, massive meltdown this morning

Gavin slept in this morning which is weird in and of itself. He didn't wake up until just before I got home from my morning walk. As I walked in the door, Gavin was working on getting his IVIG infusion ready, and it wasn't going well. It's been about an hour, and I just got Gavin calmed down enough to try working with him on his infusion. Gavin was so angry that frankly, he wasn't safe to be around. Angry is probably the wrong word. He wasn't angry at anyone. I think he was so frustrated with the infusions continuing to leak; he was beyond what he could cope with. I'm glad the kids weren't home because they would have been terrified by his behavior. Gavin was screaming as loud…

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April 15, 2019

Common Variable Immunodeficiency / GAMMAGARD / Gavin / Immunology / IVIG Infusion / My thoughts

Longer needles are needed

Gavin will be resuming his IVIG infusions this morning. He missed his infusion on Friday cause his supplies didn't arrive until late and then he ended up in the hospital. We opted to hold off until today because he was in bad shape and when he was getting back on his feet, we didn't want to put the extra stress on his body. Missing one infusion isn't a huge deal. It's not something we want to do for shits and giggles, but considering the circumstances, it was for the best. I have to call Akron Children's Hospital today because we need to order longer subcutaneous needles for his infusions. His doctor wants to try one size longer to help address the issue of his infusion leaking, requiring frequent resticks. Gavin's…

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April 15, 2019

Gavin / Major Update / My thoughts

My Son was Rushed to the Hospital: An Important Update

Alright folks, first of all, I want to thank everyone for all the thoughts and prayers over the last 24 hours. We were really scared and all truly appreciate it. Before I call it a night, I wanted to update everyone as too what happened. My brain is absolutely fried, and I'm exhausted from a long, emotional 24 hours, so I need to keep this short and sweet. We started Gavin back on Clozapine Friday night, after a discussion with his doctor. It was decided that Gavin had reached a point where we didn't have any choice. He was put back on 300mg, and we were told to give it to him at night because it will help him to sleep through the night. He'd only been off the Clozapine…

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April 14, 2019

Gavin / My thoughts / Thoughts and Prayers

Gavin’s in the hospital and here’s what happened

As I'm writing this, I'm sitting on the floor at the hospital, because Gavin was rushed here by ambulance tonight. We aren't entirely sure what's going on. He's stable but in rough shape. We suspect it's a reaction to his meds. I had actually recorded a pod this morning and talked about what's going on with Gavin. It's easier to just listen than for me to try and explain everything. Since this pod was recorded, we had to start him back on the Clozapine, per his doctor. Gavin was not doing well, and Clozapine is the only medication he can take. We suspect he's having a reaction to going back on and it was pretty scary. It's still scary because he's not doing good. About midnight, Gavin collapsed in the…

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April 13, 2019

Gavin / IVIG Infusion / Medication Management / My thoughts

We’re missing a critical delivery

Alright, so we have another little problem. With all the craziness going on in regards to Gavin's detachment from reality, we overlooked that Gavin's IVIG infusion supplies haven't arrived yet. This is not a huge deal at this point, but we've been having issues with nationwide shortages of his IVIG medications recently. We've had to switch meds a few times in the last year, and that's not a good thing. There was a temporary issue with his previous delivery being delayed a week, but the supply was replenished, and his delivery received. I'm waiting to hear back from the supplier. Usually, we get his supplies the week he runs out, so it's not unheard of for them to arrive on the actual day his infusion is due to happen. It's…

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April 12, 2019