Emmett John Archives - Page 25 of 85

It’s likely nothing to worry about but there are two much more serious possibilities that he’s genetically tied to

I still haven't heard from the doctor as to what time Emmett's supposed to be seen in the morning. I'm supposed to call back if I don't hear from them before 9 AM. This should be a simple appointment and likely resulting in a referral to Gastroenterology at Akron Children's Hospital. The most important thing at this moment is ensuring that there are no life threats or serious issues that need to be addressed. I don't think there are but we want to error on the side of caution because what parent wouldn't. Once we get to that point, we will likely get an appointment with Gastroenterology at Akron Children's Hospital. There are a couple things that we are going to need to rule out, and they are more serious…

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March 19, 2018

Emmett John / My thoughts

Hopefully this is a step in the right direction

Emmett didn't make it to school today again, because he's not feeling well. I've been running around this morning but I've got a minute to publish an update before I go walking. Elliott got to school on time and without issue. Gavin's bloodwork was drawn and we are waiting for his numbers to come back. I'm unsure of where we stand in regards to his numbers right now, so I'm a bit nervous for those results. Gavin's becoming increasingly frustrating to work with on his IVIG infusions because he wants things done a certain way but unfortunately, it doesn't work like that. There's some flexibility within the IVIG infusion process but there are fundamental parts that include zero amounts of wiggles room. That being said, once his infusion was started,…

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March 19, 2018

Emmett John / My thoughts

I don’t know what to do anymore

This post was meant to publish last night but I ended up falling asleep. At this point I'm unsure of what we will be doing with Emmett today. I'm hoping to get him into the doctors if he's still not feeling well when he wakes up. The poor kid was up until almost 1 AM. What I do know for sure, is that our morning is busy already. Gavin will need his IVIG infusion first thing in the morning. He will also need his bloodwork done immediately after dropping the boys off at school. I'm really, really hoping that Emmett is feeling better and that he makes it to school. He's been keeping up with his makeup work and that's helps to keep him current. Regardless of how he's feeling…

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March 19, 2018

Emmett John / My thoughts

I’m really getting worried about Emmett

Lizze and I have been working with Emmett to help him fall asleep tonight. He's not feeling good again and hasn't been able to fall asleep. I'm getting worried about Emmett because he's really struggling with these tummy aches. His pediatrician has checked him out on many occasions but found nothing. I think it's time to return to his Gastroenterologist. He hasn't had to go back since his food allergies cleared up but I think it's a good direction to go in. Emmett wants to go to school today but he's clearly struggling. I think I'm going to get him back into see his pediatrician ASAP. I tried calling last night but I can't schedule something until the morning. I wish I knew how to help him but I don't.…

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March 19, 2018

Autism Parenting Struggles / Emmett John / Homework / My thoughts / School Related Issues

Have I mentioned how much I literally hate homework? Can anyone relate to this story?

Emmett missed most of last week because he wasn't feeling well. I had work sent home for him to work on so he wasn't so overwhelmed when he hopefully returns on Monday. Emmett is crazy smart and way ahead of everyone else in his class, so homework is something that should come relatively easy for him. Sometimes it is and other times it's a fricking nightmare. One of the things that Autism has contributed to this mess, is a very literal interpretation of everything. Emmett interprets things in a very literal, incredibly ridged way. There's almost no way to help him work through anything, when he's literally interpretating things. An example that we are struggling with this morning is this. The instructions for a math problem he's stuck on went…

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March 18, 2018

Autism Parenting Struggles / Emmett John / My thoughts

I hate feeling powerless

It's now 1:47 AM and Emmett has just now fallen asleep. We've been trying to help him for hours upon hours. He has a really bad tummy ache and feels like he's going to puke. This is stressful for any kid but it's especially so with a kid like Emmett. To make things even worse for the poor kid, he also seems to be hitting a fever flare because he's getting sores in his mouth again. I don't know what the deal is with these tummy aches but they are consistent, especially when school is approaching. He's not making this up and he's clearly in distress but the cause remains a mystery. My personal opinion is that we're dealing with a side effect of his extreme anxiety. He struggles with…

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March 12, 2018

Emmett John / My thoughts

Emmett and I met with the principal this week

Emmett and I met with the principal on Wednesday to begin planning for the rest of the school year and beyond. There's no interest in a PTA, so Lizze and myself will be working directly with the school. Hopefully, others will join at some point but no one showed up on Wednesday. What's really cool is that Emmett and Elliott are involved in this. It helps the have a sense of ownership in the school and learn some behind the scenes stuff. As I mentioned, it was just myself, Emmett and the principal on Wednesday. Lizze was home with Gavin and Elliott because Elliott had come home from school not feeling well. Otherwise, they would have been there as well. One of the things we're working on right now is…

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March 10, 2018

Clothes / Emmett John / My thoughts / Sensory

I’ve spent the morning murdering tags

It's been awhile since I've had to do this but this morning, Emmett began freaking out about the tag in his winter coat. For some reason, after all this time, he's taken notice of it. After the coat, I was then tasked with removing a tiny tag from the bottom of the shirt he was wearing. This tag never made contact with his skin because of where it was placed but I murdered nonetheless. Emmett was in a weird place this morning and that could be why he was so sensitive to the tags that have never been a problem before. We know he's really sensitive to tags in general so we always buy tagless shirts because they seem to be less problematic. Depending on his current mood, he can…

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March 8, 2018