At this moment, I'm hiding in my bedroom pretending for a few minutes that I have the luxury of quiting. Quiting everything and just running away.. Of course, I don't have that luxury and even as I sit here, trying to be invisible, it's clear as day that I can't run away from anything, even if I truly wanted to. I'm feeling so incredibly overwhelmed today. What people just don't seem to get is that there is no break. There is no end to any of this struggle.  There are no easy solutions to anything in our life.  In fact, I've said it many times before, but all to often all I can do is pick the best of the bad ideas and try to make something work.  Please know…

I wanted to share this with my readers because I think that it's so important to remember that our actions have consequences. Please feel free to share this if you like it.  :-) This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-) Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by me. ;-) For more ways to help the Lost and Tired family, please visit Help the Lost and Tired Family.

We've all heard,  third times a charm before.  For us today it's the second times a charm. About 15 minutes into our 1st attempt, I got sick.  Lizze couldn't drive so I had to turn around and go home.  After resting a little while, I felt better and was able to attempt a second run. Thankfully all went well this time and the Holter Monitor has been returned to its home in the Heart Center of Akron Children's Hospital.  All we have left to do is make it to the immunologist down the road from the William H. Considine Professional Building and get records sent to the Cleveland Clinic and I can go home, until it's time to take Elliott and Gavin to Concord Kids for speech and OT.  Of…

The boys are getting to school a bit late this morning in because Gavin had to finish the heart monitoring before we left.  It didn't make sense to take Elliott to school and then take Gavin, 30 minutes later.  After dropping them off, we will be making our way to Akron Children's Hospital to drop off the Holter Monitor. We also have to stop by immunology for a records transfer.  More on that later..... Lizze is feeling pretty bad this morning but as she was walking the boys out of the van, she said,  come on boys, I'm taking you in. She thought it was really funny and I just happen to catch the smile.  :-) This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note…

I've been talking about autonomic dysfunction for the last year now.  I want to give a very basic example of what someone with autonomic dysfunction can experience.  This is about as basic as it gets and hopefully this will help, at least some people to better understand autonomic dysfunction. If you look at this picture, you'll notice that Gavin is wearing a long sleeve hoody. What you don't know is that it was 85°F today, when this picture was taken. Basically, Gavin's body doesn't regulate temperature.  He's almost always cold and so he wears long sleeves all year round. It's just one of the many areas that can be touched when something like the autonomic nervous system isn't working right. This site is managed via WordPress for Android, courtesy of…

Gavin had his first tantrum since returning home, this morning.  Lizze and I had just walked into my parents house to pick up the boys (I suppose it should preface this with, my Mom was watching Emmett and Gavin while we ran to the store).  We were in the house for only a few minutes when Gavin began screaming like someone has chopping off his friggin fingers or something.  In a panic, I ran to the back of the house to where he was, unsure of what I was walking into but it sounded serious.  What did I find? Gavin sitting there watching TV. First of all, Gavin didn't realize that we were there and I caught him off guard when I ran back to check on him and not…

Been having site problems again and so posts weren't going out in time.  Sorry about that.  I wanted to share how the installation of Gavin's Holter Monitor went at Akron Children's Hospital today. Let me start out by asking something. Have I said how much I love Akron Children's Hospital? If not, I love Akron Children's Hospital. :-) As you are no doubt already aware of, Gavin was at the Heart Center, located inside the William H. Considine Professional Building today.  He's was having a Holter Monitor installed.  I joke about installed but I guess that what happened, in a sense.  The process was quick and painless.  Basically, when we were called back, we were taken to a small room where Gavin was told to sit on the exam table…