For the first time this year, Emmett's hit a fever flare, complete with mouth sores. This hasn't happened in many months, which led us to believe that he may have successfully outgrown his fever disorder. Typically, these cycles would hit about every 2 or 3 weeks and last about 10 days. The flare up would include and fever and a mouthful of painful sores. As time went on, the fevers were lower but the sores got worse. Out of nowhere, around the 1st of the this year, if I recall correctly, they just sorta stopped. I have no idea what this means as far as future flare ups are concerned. Maybe they're 6 months apart now? Who the hell knows. The general consensus is that he's not actually sick and…

So I'm running around today trying to get a bunch of things done.  Lizze just woke up and so I have a few minutes to myself.  I have been working on a big pot of homemade chicken noodle soup for most of the day.  It may look like vomit now and.....well...it does, but it will look much different in a few hours.  Once everything boils down, the veggies (which you are seeing now) will break down into a really good broth, that doesn't look like vomit.  :-) It still has a couple hours of time left to build but everyone loves it, except for Elliott. This will last for a few days worth of left overs as well.  I tried some different veggies for today's batch and so I'm not…

Update: Sorry about the multiple posts. I told you my phone wasn't working right. :-( I deleted the extra uploads that took place. I'm completely buried right now.  Something I haven't really been talking about much lately is how Lizze is doing.  Typically, I don't like to speak for her because she has her own blog and shares her story there.  Having said that, she's not doing well....at all.  Menopause is not being kind to her, in any way shape or form. In fact, it's made everything worse.  Her migraine is worse, her depression and anxiety is worse as well.  The weather has taken a really cold turn here in Ohio and between that and menopause, she's been living in one long, giant fibro flare.  She began her estrogen last…

While it's a bit overdue, I wanted to share what happened when we met with Dr. Clark yesterday at Akron Children's Hospital. Basically, our purpose is going was to find out if the fact that Gavin's brain is improperly controlling his heart, has a negative impact on his heart itself.  Does that make sense? We have been worried by his rapid heartrate and didn't really know whether this was bad for his actual heart or not.  So what did we find out? Put simply, Gavin's heart is physiologically fine and while the numbers are high, they aren't adversely impacting his heart health.  Basically, as far as his physical hearts concerned, we can ignore the numbers, at least for now. His heart rate is more of an indication as to his…

While we were at the doctors yesterday, Gavin kept making it a point to show everyone his prized Sonic the Hedgehog shirt. At points it was really awkward because he would just sorta blurt out random comments about his shirt.  Everyone at the heart center indulged him and made him feel really good.  I promised Gavin that I would also post a picture of both him and his favorite shirt so ya'll can  have a gander.  :-) This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-) Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by me. ;-) For more ways to help the…

For the past few days, Elliott and Emmett have been waking up at about 4am and not going back to bed.  This means that I also have to at least stay awake because we don't want them wandering around the house.  Do you guys experience this as well? This has only actually been happening since Gavin moved home, now that I think about it.  We will probably adjust their bedtimes and see if that helps.. I hate 4am,I really, really do. This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-) Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by me. ;-) For more…

This site is really fighting me anymore.  It's like the powers that be are conspiring to make things as difficult as humanly possible. In the last year, I've had to change servers twice and it looks like I need to do so once again.  :-( Our internet was shut off earlier this week because we are of course behind.  I got it turned back on for a few days but the clocks ticking.  T-Mobile is upgrading all the towers in my area to LTE and so until it's done, all I get is 2G. That's sooooo 2003, at least I'm pretty sure it was 2003ish.  As most of you know, I use my phone to do most of my writing and my Galaxy Note 2 has taken a dump on…