As I lead my family into the first full week of June, we are facing many unknowns. We have this whole child protective services thing weighing pretty heavy. This should be very easy to address because it's as ridiculous as it is ironic. That said, we take this very, very seriously and there is a huge unknown aspect to this. Something else I'm worried about is how Gavin is going to react to the increased dosage of IVIG in a few days. If you recall, last month I was really worried because this really took a toll on him. I've also got to schedule Gavin at the Cole Eye Center for a follow up appointment.  This is really important because his eye doctor can detect neurological problems via an eye…

Gavin threw his tantrum, I want to say.....around noon today.  After he got himself under control, he wanted to go lay down. It's now 5 hours later and he's still sleeping. The general rule is that if he's sleeping, there's probably a reason for it.  It occurred to me that he may have sent himself into a little autonomic crisis with his tantrum. With Gavin, you just never know ow what you're dealing with. He's always a moving target and nothing is as it seems. Anyways, Gavin was pretty tough to wake up but is slowly moving around.  Hopefully, we can avoid any further problems today. This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism…

This week Gavin will once again make his monthly return trip to Akron Children's Hospital for his IVIG infusion.  Like last month's, this will likely also bring with it a bump in the dosage because his levels are not were they need to be.  I suspect that his infusion will also be his last day of school as well.  I can't remember the date, right of the top of my head but I believe it's Tuesday or Wednesday.  I have to look at the calender to be sure.  The boys last day of school is the 7th. As Gavin's body is struggling with the IVIG bumps, he will likely require at least one or two days off to recover. We'll have to see how he does. Hopefully, this will be…

So far this morning, I have been reciting the Serenity Prayer, over and over and over again. The boys are all overstimulated and all over the place.  Emmett is practicing the art of pushing people's buttons and the other boys are practicing the art of reacting to having their buttons pushed. Needless to say there is lots of noise, chaos and fighting.  Lizze isn't feeling well but we are going to try to find something to do that will help to preserve our collective sanities. Perhaps we will go visit family for a little while. Maybe even take the boys to the playground and let them get some wiggles out. Right now, I'm going to visit my happy place for a few minutes and give myself a time out.  :-)…

With everything that has gone on over the past few days, I neglected to share something pretty exciting with you all.  Most of you know that I'm a huge android fan. I'm not anti-iPad in any way.  That said, I don't like the way apple does business and that has been a big reason why we don't buy apple products.  However, recently that has changed. I've acquired my first ever iPad. I'm working with a company that wants me to do a comparison between android devices and the iPad, as it relates to kids with Autism.  This was an interesting proposal for me but I didn't own anything apple. To address this, they sent me a brand new iPad with Retina display and I've been playing with it for a…

The boys came home from their grandparents in rare form. Especially Emmett, he was causing a lot trouble with his older brothers. I had to use every last drop of patience I had, just to male it through the day without doing loco. Emmett refused to brush his teeth last night and ended up having a really big meltdown over it.  Since he was already having such a rough day, we decided not to pick that battle.  Sometimes, as special needs parents, we have to step back and ask ourselves, is this particular  attention worth it? Do any of you folks out there do the same thing? Do you have to pick your battles as well? This site is managed almost exclusively via WordPress for Android. Please forgive any typos as…

On Friday afternoon, I received a phone call from Dr. Moodley's office at the Cleveland Clinic.  Gavin is being referred to Urology and we are scheduled to be in Cleveland on June 12th. The reasoning behind this appointment is because of Gavin's recent issues with bladder control. Bladder control issues are most likely a progression of his autonomic dysfunction.  However, before we can just say that, we have to rule out structural problems that could be responsible for this relatively recent problem. If Urology clears him, then my understanding is that it's reasonable to assume that this is related to autonomic dysfunction.  It's also possible that it could be medication related but that's doubtful because this was going on before the recent medication changes related to the autonomic stuff.  We…