On Friday afternoon, I received a phone call from Dr. Moodley's office at the Cleveland Clinic.  Gavin is being referred to Urology and we are scheduled to be in Cleveland on June 12th. The reasoning behind this appointment is because of Gavin's recent issues with bladder control. Bladder control issues are most likely a progression of his autonomic dysfunction.  However, before we can just say that, we have to rule out structural problems that could be responsible for this relatively recent problem. If Urology clears him, then my understanding is that it's reasonable to assume that this is related to autonomic dysfunction.  It's also possible that it could be medication related but that's doubtful because this was going on before the recent medication changes related to the autonomic stuff.  We…

With everything that's gone down since yesterday, Lizze and I have had time to think about what's going on.  Despite my initial reaction of complete shock, to having child protective services show up at our door, we will fully cooperate with this investigation.  Because of just how.....well......ironic the allegations are, it may be possible that once they speak with Dr. Patti, this will simply go away.  Dr.  Patti carries a great deal of klout where we live and she's behind us 110%. Once she is able to speak with them and confirm that we actually spend a great deal of time at the doctors, I'm hoping that we will be able to clear this up without dragging my very sensitive special needs boys into it.  The way I see things…

Emmett is really, I mean really into Iron Man lately.  He has this piece of Iron Man armor that he wears all the time.  He loves it but in truth, this toy is the bane of my existence.   This thing doesn't hit really well and Emmett has to have it perfectly placed.  If it moves or slips, he freaks out and has to have it replaced. I literally put this thing on him 30 or 40 times a day.  Do any of your kids have a toy that they only keep because you love your child more than you hate the toy? This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach…

I hope your Saturday is a pleasant one.  Lizze is sleeping and I'm sitting downstairs with the dogs. We were going to try to go to the farmers market this morning but I don't have the heart to wake her up. Anyway, I wanted to just say that I hope you all have a great weekend.  I'll be around but with everything that we have going on, I'm just a bit distracted. This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach me via email, please Contact Me

I wanted to take this opportunity to say that Lizze and I are so, so grateful for all of your love and support.  We are both so amazed by the amount of people sending us messages of hope and compassion.  Thank you all for being a part of our family. This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach me via email, please Contact Me

I have to just say that today has gone straight down the crapper. I mean....... wow.  I know that the right thing to do is not give the person (whom we think we know) the satisfaction of knowing they are affecting us.  Having said that, I think we all know that this has added a tremendous about of strain to our lives.  For the record, Lizze and I are complete disasters right now.  Let me be very clear. I'm not afraid of what will come of this because we have nothing to hide. However, it does shake our trust because this was very likely someone that we know.  The boys are at their grandparents so Lizze and I could process this without stressing them out. Lizze is a walking panic…

It's not too often that I feel the need to really address something that has happened to my family,  in the form of an open letter. This is one such occasion. My hope is that by sharing this openly, we can all learn a valuable lesson. A couple of hours ago, child protective services showed up at our door.  Apparently someone lodged a complaint this morning and they have launched an investigation. That's my understanding. I spoke with two social workers from Stark County Children Services Division, while standing on my front porch. They explained that it had been reported that we are not seeking proper medical care for our children. They also said that we have been accused of not taking them to their follow up appointments as well.…

Do you remember last week, when the boys went to the Akron Aeros baseball game with their class and my Dad? Apparently, Gavin's teacher had the kids create a pennant that expressed their individuality and theme it to baseball.  I hadn't even seen this until yesterday morning.  I brought this up to Gavin's teacher at the wraparound meeting yesterday and she explained what the pennant was all about.  Gavin created a team called the Summit Academy Hedgehogs. We were talking about this yesterday and it was really cute because in all the excitement of the game, it hadn't occurred to his teacher what had inspired this masterpiece.  It just clicked yesterday and I'm wondering if anyone else can share with me what they think is the inspiration behind this pennant. …