Last night Gavin had a really bad bout of chest pain. We were leaving my parents house and he doubled over.  It's really  frustrating because no one can ever find anything wrong and we just had him to cardiologist a few days before this whole CPS thing went down. The really scary part is that Gavin never complained.  Elliott found him and came running to get us.  This begs the question, how often is this happening?  Gavin's really strange in the sense that he never complains about serious things and severe pain.  However, he will completely freak out over a hang nail. I've always been told that it's likely a sensory thing but it really makes things more challenging, especially when it comes to keeping up on his health.  Anyway,…

Elliott decided today that he was going to start Hula Hooping at Grandma's house.  Having never done this before, I'd say he's doing pretty good.  https://www.youtube.com/watch?v=g2ys3VJPP8w&feature=youtube_gdata_player This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach me via email, please Contact Me

Lizze and I just picked up the boys and have arrived home.  The appointment went okay, I suppose.  The dime store version goes like this.  We don't know anymore now than what we did walking into the appointment today. Does Lizze have Celiac? We don't know....yet. All the bloodwork is currently being redone because of how long it's been since the last test.  The labs were drawn before we left and we should know the results very soon.  Regardless of the results of this lab work, Lizze is scheduled for an endoscopy on July 15th. This will serve double duty.  If she is positive for Celiac again, they will do the biopsies at that time.  However, this is going to happen anyway because they are very concerned about her constant…

We have arrived at the Cleveland Clinic and are awaiting the news as to what direction our life is going to take. On the way up here today, Lizze reminded me that she also has a slow stomach and this appointment is also to discuss that as well. Please say a prayer that everything goes well and she can catch a break. This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach me via email, please Contact Me

Today is going to be pretty crazy. We have to leave shortly for the Cleveland Clinic and drop the boys off at my parents on the way. Gavin is still manic and psychotic. We have to give his meds time to work and in the meantime, be as patient as humanly possible. It's not easy though because he just talks nonstop. Thankfully, he's not violent at this point. That's actually a pretty big blessing. There are a few more concerns I have about Gavin, concerning his health but that will have to be another post. Best wishes to alp of you on the Manic Monday. This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me.…

Today's victory is one that I'm very, very proud of.  For a little while this morning, Elliott and Emmett were getting along and even working together on a game.  Right before I snagged this picture, Emmett had his head on Elliott's shoulder.  It was so precious.  The rest of the day was hit and miss but mostly miss.  However, I have this moment of peace and tranquility to remember.  It's these moments that help to make it through the really tough ones.  This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-) Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by me. ;-) For…

Gavin has been having some problems the last two days and we're having to address these issues.  This isn't even remotely fun and honestly, I hate every minute of it. Yesterday, I was in the bathroom and Gavin was in his room reading.  Elliott and Emmett were playing in their room and Lizze was at yet another funeral for a family member that's passed away. When I came out of the bathroom, Gavin was standing in the hallway, hanging out with Emmett. Gavin is not allowed to be alone with his brothers. He knows this. Dr. Patti, Lizze and myself have talked at length with Gavin about this rule. He understands, at least to some degree and has removed himself from situations that would allow him to be alone with…

In the morning I will be driving Lizze to the Cleveland Clinic meet with her Gastroenterologist. This is a really important appointment because we will very likely find out if Lizze has Celiac disease. You may recall that Lizze has tested positive for the Celiac antigens.  While this test was done about 7 years ago, you only test positive for antigens if your body is reacting to gluten.  At the time, her colonoscopy was negative and so her doctor at the time, told her not to worry about it. 10 years ago, my Mom was diagnosed with Celiac disease when no one had ever heard of it before. It's believed that my Mom went at least 10 years without being diagnosed and it literally destroyed her body.  She's doing much…