I'm completely exhausted and Emmett's been up since before sunrise, screaming.  His mouth sores have really taken their toll on him.  This is the worst fever flare to-date.  He's miserable and unfortunately, taking everyone with him. Emmett won't take the medications that will kill his pain because even flavored, they taste horrible and he ends up throwing everything right back up. Which essentially makes things worse. I can tell that it's already going to be a very, very long day. At the time of writing this post, Lost and Tired is still down do to a server crash. I'm writing anyway and will post these when I'm back online.  To keep things in context, it's about 8 am. I can't wait to go back to sleep.  I love sleep.  Never…

I attempted to share this yesterday but seeing as that wasn't possible, I saved them for today.  Anyways, Emmett has been really focused on drawing and coloring lately.  He's been doing good really, really well and I'm quite impressed with his ability.  He's pretty young and to be able to do this, I think is pretty awesome.  Check it out.  This is Cheep-Cheep, a character from Super Mario Brothers.  Emmett drew this freehand.  This next one is really cool because it contains a ton of different characters from many different things.  See if you can identify any of the characters he drew. This is a compilation of random characters that Emmett really likes.  All of these were freehand. This site is managed almost exclusively via WordPress for Android. Please forgive any…

I always like to connect my readers with potential services and em sources. I connected with Takiya and found what she has to offer the community very interesting. I wanted to share this with you all because I thought maybe someone could benefit from this. Please note that this is not an endorsement (because I have no first hand experience) but instead a sharing of information that may be of benefit to someone. Courageous You   by Takiya Paicely, MSW, LCSW   'Perhaps it takes courage to raise children' John Steinbeck, East of Eden   I want to start by thanking Rob for giving me the opportunity to discuss my mission and services to his readers.  I am honored and privileged by this opportunity.   Hi, I am Takiya Paicely. …

I had to migrate Lost and Tired, My Life Beyond Labels and the My Autism Help Forums to a VPS.  This happened a few days ago and this morning, the server crashed.  Turns out the VPS with Bluehost is still in beta. Of course, I wasn't told that when I signed up and they sold it to me.  I'm actually a bit peeved about that but as I said, it seems to be working now and it's working pretty well. They did however inform me today that I need to more to a more powerful server already.  For now, I think it's working pretty well and definitely better than the last server. Anyway, please let me know if you experience any problems viewing this site.  You can also try clearing…

When I woke up this morning and Emmett was fever free and feeling better, I thought we were in the clear.  At this time, his fever is back once again and his mouth and throat are hurting as well.  To give you an idea of how much pain he's in, the hospital gave him a prescription for a form of liquid vicodin that's mixed with Tylenol.  I think he may have still been experiencing pain relief from that this morning because as the days gone on, things have rapidly gone downhill. He has 2 more doses of prednisone left, one today and one tomorrow. Because he was feeling better this morning, there wasn't a need to get him into immunology right away. There's nothing that can really be done that…

Here's a super quick update. I'm going to call it a quikdate. Emmett's has been melting down for a long time.  He was doing good this morning but the pain has returned and he's miserable. The fever flare is kicking our butt. This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach me via email, please Contact Me

Lizze was up most of the night with hot flashes.  Form my perspective, the estrogen patch doesn't seem to be helping much.  She's exhausted and miserable.  At least Emmett's in a better place at the moment and so life is a bit more manageable than its been the last few days.  Lizze is trying to sleep right now and I'm trying to get some work done but failing miserably.  The boys need my attention and Gavin needs constant supervision. I have to call Emmett's doctor and try again to reach John's Hopkins for Gavin.  I'll have to do that when Lizze wakes up, so that I can hide upstairs in our bedroom, where it's quiet. This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect…

Emmett's on his 3rd dose of prednisone today and all signs point to him feeling better.  Typically, when we employed prednisone in the past, it's significantly shortened the length or duration of the flare.  Visually, the sores are reduced in size and appear to be going away.  Unfortunately, while prednisone works well to diminish the flares and mouth sores, long term use is very dangerous.  Prednisone and destroy your joints as well as suppress ones immune system. This is not a weapon that we can bring to these battles very often.  For now, Emmett seems to be in a better place.  He talking better and not complaining constantly of his mouth and throat hurting.  This is a positive way to begin the day. This site is managed almost exclusively via…