God help us…… Please

It appears that Emmett has rolled out of his last fever flare and right into another one.  That makes it only 3 days or so between flares.  This has happened a few times before but not very often.  I suppose this answers the question as to whether or this this was a one time thing.  Apparently, the flares are back, at least for now anyway. I have a thousand things racing through my head right now.  Emmett's going to be absolutely miserable and is already beginning to get cranky. The other thing I fear is how this will impact school in the fall. Most schools have a policy in place that says something like, any child with a fever of 101°F or above must stay home. While to the best…

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This is what “psychotic” is for my family

Gavin allowed me to record him playing cards with his friend Spirit, Tails, Knuckles and Amy.  In case you're wondering, there's nothing wrong with your eyes.  The are characters are only visible by Gavin. This short video is meant to help you better understand what psychosis translates to in real life.  Granted, everyone is different but the basic premise is the same.  The person in question loses touch with reality.  This is not a vivid imagination and this diagnosis has a very long documented and heartbreaking clinical diagnosis. This video is safe to view at work. There is no violence at all.  Gavin just talks about his friends and what they are doing.  https://www.youtube.com/watch?v=qPwDjFL-z9o&feature=youtube_gdata_player This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES…

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Jamming to Phineas and Ferb Music

Emmett and I are dancing to some Phineas and Ferb music. I have a membership to Google Play music unlimited and they have all the Phineas and Ferb music FREE. I thought I would share my personal favorite with you all.  S.I.M.P forever......... What's you and your kids favorite.  Paste the YouTube url in the comments and share with the class. https://www.youtube.com/watch?v=0nKG_O0Ei_o&feature=youtube_gdata_player This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach me via email, please Contact Me

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Great job making good choices

I just want to say that Gavin has been making some pretty good choices today.  As a result, he earned some time to play video games.  While this won't always be the case, it's working for right now and so I'm gonna roll with it.  The most important thing is that I just wanted to acknowledge and congratulate Gavin for his good choices.  This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach me via email, please Contact Me

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What does this week hold for the Lost and Tired family?

To the best of my sleep deprived knowledge, this is going to be a relatively slow week.  I'm knocking on wood as I say this because I don't want to jinx myself. The biggest and most important thing we have to do this week, aside from surviving it is Gavin's IVIG infusion. His infusion this month is scheduled for Tuesday. I don't know if his dosage is going to be increased this time or not.  I think that largely depends on last month's lab work. We have to make sure that this month's lab work gets faxed to the pharmacy so that we can refill his Clozapine script. We had a hiccup with last month's results and it caused a brief delay in his refill. I expect that Gavin will…

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Oh the joys of raising a RAD teenager with Autism..

I mentioned earlier that the E's returned home this afternoon from their grandparents.  It's nice to have them home because I missed'em. With that said, we are once again thrust back into the  reality of our lives. When the younger boys are gone, Lizze and I can relax because we don't have to supervise Gavin's every move.  When Elliott and Emmett are home, Gavin is not allowed unsupervised contact with them. This is a rule created by Gavin's psychiatric professionals and we have to enforce it. We totally agree with it but it's exhausting to enforce.  Since the boys have returned home, we will have to clock back in and put the rules and restrictions back into place. I really wish it wasn't this way. I wish we could trust…

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Today’s Topic: Managing Problem Behaviors

I want to try and get back to doing Daily Topics. Today's topic was requested by my readers know Facebook. We are going to be talking about Managing Problem Behaviors. Things like meltdowns, aggressive behaviors and anything else that's on topic. No question will be looked on as silly. We can all help each other by sharing our own experience and knowledge. Don't be shy and join the discussion.  Ask questions or answer someone else's. This discussion will take place right here in the comments below as well as on Facebook (www.facebook.com/lostandtiredblog). Comments made in the Facebook thread should be imported into the comments below. This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help…

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Do you ever find Facebook depressing? I sure do..

Every once in awhile, I find myself really depressed by Facebook. It's not so much Facebook as it is reading other people's updates.  Let me explain..... It's not that I'm unhappy with my life because I wouldn't trade it for anything. However, there are things that I miss or feel like I'm missing out on.  One of the biggest things lacking in my life, is probably friends. I had lots of friends in both high school and college.  I thought I would take many of these friends with me throughout life.  I was wrong about that. Facebook is the only window I have into my old friendships. As many of you probably already know, when you're a special needs parent, you don't always have the luxury of friendships. It's never…

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