I spoke with John's Hopkins this morning about where we stand in respect to Gavin being seen. Apparently, they got a large part of the records needed but they are missing the case notes.  The case notes are a big deal.  I email release forms to the Cleveland Clinic today and hopefully, they should have the records fax over within the last week or so.  It's not really a question of if we are taking Gavin across several state lines to be seen by the best hospital in the country, it's more a matter of how and when. If Gavin is going to be seen in the AT clinic, we will approach this whole thing in a certain way.  However, if Gavin's going to be seen outside of the AT…

Dressing kids who have sensitive skin can be a battle at times. It’s true that children love to throw tantrums while dressing, but many a times they genuinely get irritatedby certain clothes. For example, tags on shirt result in itching or sometimes…

I just got off the phone with Dr. Reynolds office.  Dr.  Reynolds is Gavin's psychiatrist and one of the very, very few people who specialize in Childhood Schizophrenia. Anyway, we have an appointment scheduled for August 27th. They also have Gavin on a wait/cancelation list and Dr. Reynolds is going to working to get him in ASAP.  The truth is that Gavin's not a danger to himself or anyone else at this exact moment in time.  While watching him go through this is disturbing, on many levels, he's not doing anything that would require immediate hospitalization or intervention.  My guess is that we'll be in to see him in the next week or so.  Unfortunately, when you're lucky enough to have a specialist of Dr. Reynolds caliber, it's essentially a…

Today is going to begin with a round of phone calls to figure out what to do with Gavin.  It's apparent that he needs to have more work done to his medications. His anti-psychotic medications can be bumped up one last notch before he hits the ceiling.  To be honest, I'm really worried that we are going to be unable to bring him back to a more solid footing within reality.  I don't know of what we are going to do if we are unable to treat this psychotic break.  I also don't know if this is one of those things that will work itself out, if simply left alone.  This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired…

As I was walking upstairs to go to bed tonight, I found Elliott standing at the top of the stairs.  After being startled by this, mostly because Lizze and I were watching Supernatural all evening, we tucked him back into bed. I ended up sitting with him until he fell asleep.  Something was bothering him but he wouldn't talk about it. All I could do was provide whatever comfort I could and respect his wishes not to talk about it. I made sure that he knew I was there for him and I let it go.  Letting it go is so much easier said than done for me.  I'm a fixer by nature and I want to fix whatever is wrong.  Unfortunately, sometimes the only thing I can do is…