Because of Gavin's autonomic dysfunction, his doctors have him on a very, very strict fluid intact schedule.  Gavin's only allowed 2.5 liters of water (only) per day. We carefully monitor this because any more than 2.5 liters of water can cause an autonomic crisis any less and it's the same problem. Last night I just realized that Gavin's been drinking an extra 750 ml of water per day. Gavin has a water bottle that we've marked, so he knows where to fill it to.  He recently switched into a different water bottle and I erroneously assumed that it had been measured out. Last night I decided to double check because it didn't look right.  Turns out that he's been adding an extra 250 ml, every time he filed it up. …

Dearest Monday, So often it seems that we get off on the wrong foot.  You say some things and I say some things. Before we know it, the entire day has gone to hell in a handbasket. Let's make today an exception to that rule.  I look forward to enjoying you Monday and all that you will bring my way.  This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach me via email, please Contact Me

This was a brilliant moment on Sunday.  Emmett fell asleep, all snuggled up to me on the couch.  I was essentially pinned by him for at least an hour.  As a father, I absolutely adore and live for these moments. This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach me via email, please Contact Me

This is a really interesting question and I would love to get your feedback. Would you support a year round school year for your child on the Autism Spectrum? Please take a second and answer the poll. Let's discuss this in comments below. :-) [socialpoll id="12167 "] This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach me via email, please Contact Me

I've written many time about Autism Awareness.  Personally, I'm not a fan of the whole Light it up Blue campaign.  That seems more like a marketing campaign to me and not about raising awareness for our children and adults with Autism.  To each their own. That's just my personal opinion, you're obviously free to feel or think differently and I totally respect that.  :-) April is still a ways off but I think that we should begin thinking about what we can do as a community to improve Autism Awareness.  Personally, I would love to see Autism Awareness take a more natural and organic approach to helping people understand better what Autism is.  I fear that we have put our faith in organizations that may have lost touch with their…

Admittedly, I've been pretty wrapped up in my own family lately as I'm sure you can understand.  My goal is to get back to not only sharing my family's experience but also my thoughts and opinions on topics that impact the Autism and Special Needs community. I know that not everyone agrees with my opinions nor do I expect them to.  I've tried to be a voice of reason and provide relavent information, from both sides, so that you can make educated decisions. The My Autism Help Forums were designed to be a place for members of the special needs community to go and share experience, ask questions, find answers, a sounding board or simply a judgement free zone to vent when they need it. I've been finding it more…

This one really doesn't need any explanation.  I'm so proud of my boys forgetting along and for Elliott embracing the situation, even though Emmett was well within his personal space. Not a big deal you say.. In this house, we take what we can get.  :-) This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach me via email, please Contact Me

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