I'm growing more and more concerned about Gavin's condition. His continued neurological regression is really scaring me. The biggest and most obvious problem is his memory or rather lack thereof. Gavin has absolutely no short term memory.  I'm thinking that we need to employ a small note book and have him keep it on his person. We will have to have him write things down and maybe that will help him to remember at least some of the things he needs to remember. Sometimes he can remember but most of the time he really struggles. He will be back at the Cleveland Clinic in a few weeks and we can explore our options with his neurologist. Unfortunately, I don't think there is going to be much we can do. We…

Elliott is the pickiest eater in our family.  Getting him to try new things is not easy, by any stretch of the imagination. Having said that, he's created a sandwich that he loves to eat now.  It's a barbecue bread sandwich.  It's literally barbecue sauce between two pieces of bread. It really looks gross but he likes it and I can't complain about him trying something way outside of even my comfort zone. Great job Mr. Elliott, I'm so proud of you cresting something that you enjoy eating. With that said, what's the grossest thing your kids have eaten or enjoy eating. I just know someone is going to say poop. If so, please don't feel bad.  My oldest has PICA and I've seen him eat things that make me…

Combating Hate with Hate? My thoughts on the Infamous Pink Letter   I wasn't going to address this originally but I have since had a change of heart. We've all read the infamous pink letter. You can read it down below if you haven't.  A great many people are angry over this letter and rightfully so. While my thought may not be popular, I feel compelled to share them regardless. Those of you that have been following me since the beginning, might remember my family being attacked in a similar fashion.  Ours was in the form of some very, very hateful comments.  Here's a quote from that hate directed at my family:  The post can be found here “Let me get this straight… you have three retarded kids. That means that not…

I wanted to let you all know how orientation at the boys school went.  First of all, Elliott ended up not going. Instead he spent some time with Grandma Gorski. The rest of us went and met the boys new teachers and visited the classrooms.  Everyone is really excited and I feel like this is going to be an exceptionally positive year for everyone.  I think that Elliott will do just fine and perhaps we will make another trip out before school starts next month. This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach me via email, please Contact Me

Lizze and I have never been thrilled with the fact that Gavin is on some of the medications that he is.  Unfortunately, it's not about what makes us happy or comfortable, it's about what's best for Gavin. Because Gavin is so complex, the medications he needs to help manage his life are hardcore. The silver lining in all of this is the reality that his life is dramatically improved by these medications. Gavin and a medication free life are simply not compatible. While this is overwhelmingly positive, we do hit our fair share of hiccups or bumps in the road. Gavin is on a medication called Clozapine. This is a very hardcore antipsychotic. In fact, it's an absolute last resort and is the most tightly controlled medication in the US.…

Lizze and I are hanging out with Gavin tonight. It's been a while since we've had one of these nights. We are watching Star Trek tonight. Not the old ones, but instead the remake from a couple of years ago. Gavin loves SiFi and so we thought we could all watch it together.  It's nice to be able to spend time like this with him. We have a few snacks and are having a good time.  :-) This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach me via email, please Contact Me