I spoke with the Cleveland Clinic on Monday. A nurse for Gavin’s neurologist is supposed to call me back to discuss what's going on with Gavin. While on the phone, I decided to check the status of the records transfer to John's Hopkins. As far as that goes, we're dead in the water because they never received the release I signed and emailed back a few knows ago.  I have to do this again and see if Lizze's Mom can fax it from work for us. This has to get done.  Once the release is signed and received bybthe Cleveland Clinic, it will take about 1 to 2 weeks to transfer the records. . That's where we stand at the moment. As soon as I hear anything new, I'll be…

So Lizze was notified that she was selected for jury duty last week.  She sent in her form and her number was so high that we never thought she would be called.  Guess what? Tonight she was called. This presents a major problem. She's sick.....still and there's no one to call and explain this to. Aside from that, Emmett's in a flare and Gavin has a very important appointment with Dr. Reynolds in the morning.  There's no one to help with the boys either.  Even if she wasn't sick, this isn't something she could handle. I'm not entirely sure what to do.  She physically can't go. Her number, along with over 100 others, we're all called and so they would likely send her home anyway. At this point, the only…

I'm a firm believer in knowledge leading to Awareness. It's not always about making a huge splash.  Sometimes a few ripples can be a great way to start things off. In that that spirit, I would like to share a short series of posts entitled Knowledge is Awareness. In these posts I will share the most basic Autism facts.  While they may seem like commonsense to those of us living with Autism, I assure you that it's not to a large portion of the world. Please help me spread these around and please feel free to share any of the images.  If you have an Autism fact that you would like to see featured, please drop me a line and let me know. This site is managed almost exclusively via…

So far, Monday hasn't been too kind to us. We found out that Gavin has lost OT, PT and Speech.  Lizze still isn't feeling well and Emmett woke up this morning with a mouthful of sores. He's got a round of Benadryl and Advil on board and seems to be feeling a little bit better, at least for now. Over the past few weeks, Emmett appeared to be going into several fever flares that ended up amounting to nothing.  With any luck, this one will follow the same path.  I really try to be the bigger person.  Sometimes I succeed and other times, not so much.  In the case of Monday's, I just can't seem to be as forgiving.  I usually just end up frigging hating Monday's.  How about you?…

I just got a phone call from Condorde Kids, the place the boys go for OT, PT and Speech. Bad news. Gavin will no longer be receiving treatment because insurance says that he's too old and his scores aren't bad enough. Gavin's on disability and has been for most of his life.  Up until a few months ago, that meant that he was on straight Medicaid. Recently, everyone on Medicaid was forced to switch to an HMO provider. Our options were very limited and we had to go with whoever would cover the most.  At the time, everything was fine and Buckeye was handling everything, they were a pain in the ass, but it worked.  Not only has that changed and they won't cover his therapy anymore, they also wondering…

  Gavin's passion for drawing is increasing every day.  Here is his current time favorite drawing he's done.  This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach me via email, please Contact Me