Been sitting at Dr. Reynolds office with Gavin for over an hour now.  My Mom drove us cause of the bad tire I just discovered on the van. Gavin's quietly playing on his tablet but I but it gets to be ridiculous after awhile.  We always call ahead to find out about any waits, so we can adjust our schedule accordingly.  We did so today as well and everything was running on time and without delay. Of course, as soon as we get there, the schedule goes downhill and we are once again waiting.  Waiting is something that happens quite often for us and generally speaking, it's not that big of a deal. However, I seem to be running short on patience today and if this appointment wasn't so important,…

I spoke with the jury commission this morning about Lizze's situation. I explained all that we have going on as well as accept responsibility for not doing this last week when we sent in the paperwork. The woman on the phone was very nice and said that I need to have something faxed to them before noon..  If that happens, she will present the letter to the judge and the judge can then excuse her.....hopefully. While this is something we don't usually talk about, one of the reasons Lizze is sick all the time is because of severe IBS and gastroparesis. She's had these for years and both are made worse by stress. I will spare you any more details but suffice it to say, it's pretty bad. The ironic…

I spoke with the Cleveland Clinic on Monday. A nurse for Gavin’s neurologist is supposed to call me back to discuss what's going on with Gavin. While on the phone, I decided to check the status of the records transfer to John's Hopkins. As far as that goes, we're dead in the water because they never received the release I signed and emailed back a few knows ago.  I have to do this again and see if Lizze's Mom can fax it from work for us. This has to get done.  Once the release is signed and received bybthe Cleveland Clinic, it will take about 1 to 2 weeks to transfer the records. . That's where we stand at the moment. As soon as I hear anything new, I'll be…

So Lizze was notified that she was selected for jury duty last week.  She sent in her form and her number was so high that we never thought she would be called.  Guess what? Tonight she was called. This presents a major problem. She's sick.....still and there's no one to call and explain this to. Aside from that, Emmett's in a flare and Gavin has a very important appointment with Dr. Reynolds in the morning.  There's no one to help with the boys either.  Even if she wasn't sick, this isn't something she could handle. I'm not entirely sure what to do.  She physically can't go. Her number, along with over 100 others, we're all called and so they would likely send her home anyway. At this point, the only…

I'm a firm believer in knowledge leading to Awareness. It's not always about making a huge splash.  Sometimes a few ripples can be a great way to start things off. In that that spirit, I would like to share a short series of posts entitled Knowledge is Awareness. In these posts I will share the most basic Autism facts.  While they may seem like commonsense to those of us living with Autism, I assure you that it's not to a large portion of the world. Please help me spread these around and please feel free to share any of the images.  If you have an Autism fact that you would like to see featured, please drop me a line and let me know. This site is managed almost exclusively via…

So far, Monday hasn't been too kind to us. We found out that Gavin has lost OT, PT and Speech.  Lizze still isn't feeling well and Emmett woke up this morning with a mouthful of sores. He's got a round of Benadryl and Advil on board and seems to be feeling a little bit better, at least for now. Over the past few weeks, Emmett appeared to be going into several fever flares that ended up amounting to nothing.  With any luck, this one will follow the same path.  I really try to be the bigger person.  Sometimes I succeed and other times, not so much.  In the case of Monday's, I just can't seem to be as forgiving.  I usually just end up frigging hating Monday's.  How about you?…