Autonomic Crisis: Please Pray

Okay...  The doctor has been in and I think we have sufficiently confused him with all of Gavin's health issues. Gavin's renting and watching TV while they figure out what to do. This is what happened. My Mom called about 11am this morning and told me that Gavin was having vision  problems. She also said the his right eye was droopy as well. She was able to learn from Gavin that this has been happening for awhile now. Thoughts were racing through my head. I was worried and frustrated because why the hell wouldn't he tell anyone about this before? Lizze and I rushed over and spoke with Gavin. According to Gavin, he was walking into the light and his vision got really blurry.  All he could see was purple…

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Please pray for Gavin. Rushing to the Emergency Room

Please keep Gavin in to your thoughts your thoughts, we're rushing him to the ER at Akron Children's Hospital. I'll explain more when I can. This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach me via email, please Contact Me

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It seems a cruel twist of fate

It's so ironic that all I long to do in the morning is sleep in, especially when I can't. . However, when I'm presented with the chance to do so, I can't,  because I'm wide awake. Can anyone relate to this? I'd love to hear about it. :-) This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach me via email, please Contact Me

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Did you know that Lost and Tired is on Facebook?

I wanted to share with all my new and existing readers, that I'm on Facebook.  There are a ton of interesting conversations going on right now on my official Facebook page and I'd love for you to be a part of it. Visit me on Facebook - - - - - > Click Here Be sure to "Like"  my page.  :-) This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach me via email, please Contact Me

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Gavin’s Lego Kingdom

I wanted to share what Gavin was working on today.  It's his own little Lego kingdom and it was inspired by Elliott and I playing the old Ages of Empire's II on our computer. After watching for a little while, he decided that he wanted to make a Lego version and this is the result.  I realized today, just how low our Lego population has become.  If it were an animal, Lego’s in our house would be on the endangered species list. He used a large portion of what is left of a previously massive Lego collection. I suppose it's time to start replenishing the Lego population.  Anyway, he was really happy with his creation and wanted to make sure that I took a picture and shared it with all…

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We have no kids tonight

We have no kids tonight. That's right, we are childless and really enjoying the peace and quiet. We are just hanging out and watching Netflix. I can't wait to actually go to sleep, sleep through the night and a large portion of the morning.  This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach me via email, please Contact Me

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Someone keyed our van :-(

So the boys are spending the night at my parents house to tonight.  It's sort of a say goodbye to summer kinda thing.  When we dropped the boys off, the plan was to remove our bad tire and swap it out for the spare.  We did that. However, while we had the van up in the jack, I noticed that someone had keyed the rear passenger side door.  They're deep enough that they won't buff out but I couldn't get a decent picture for sending reason.  This was clearly done on purpose because it looks like someone scribbled on the door with a car key.  What's wrong with people.  Whatever happened to respecting other people's personal property? I would never do that to someone else and I don't understand why…

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A big step forward for Operation Hope

The Cleveland Clinic contacted me last night and wanted us to know that they are going to take care of getting the records to John's Hopkins. I have to get them a fax number today and they will rush them over. They are also going to try and bump up Gavin's appointment with the amazing Dr. Moodley. This is a big step forward since the records getting process was sorta tripping us up right now. I've got everything read for when they call.  This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach me via email, please Contact Me

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