Today has been a rough one for me.  I'm battling with the insurance company for Gavin's meds and that future is up in the air at this point.  I also spoke with John's Hopkins today, more specifically, the AT Clinic at John's Hopkins. They received the faxes from the Cleveland Clinic but the last 10 pages were not clear.  I have to get those in the morning and email them to AT Clinic. I spent a good chunk of time on the phone with them today.  We discussed Gavin's current condition and his latest hospital stay.  We also discussed the possibility of making the journey out there.  At this point, we don't know what's going to happen.  She's going to speak with the doctor and figure out what we should…

Lizze is in really bad shape today and so she's sleeping still.  After my morning walk I began a wave of phone calls. My first call was to Dr. Reynolds office to inquire about the status of a physicians override for Gavin's Clazopine prescription.  I needed to follow up on the denial letter we received from Gavin's insurance company yesterday. Turns out that Dr.  Reynolds office has submitted the needed paperwork 2 or 3 times already and each time, it's denied because Gavin's dosage is higher than that of the FDA recommendation. What does this mean for Gavin? This is considered a crisis situation because he's got one dose left and that's it.  If he comes off the meds and starts them over again at a smaller dose, the life…

Today's "Did you know's" of Autism is a bit different. I'm feeling a bit fiesty today.  :-) This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired "Like" me on Facebook Visit the My Autism Help Forums To reach me via email, please Contact Me

Emmett is fiercely independent and always has been.  Don't get me wrong, that not necessarily a bad thing, at least all the time.  However, this is only his second day of school and he wouldn't let me walk him in. That was kinda tough.  I don't want him to struggle but at the same time, it was just so easy for him to move on, it kinda hurts.  Perhaps that a bit narcissistic but I bet at least someone out there understands what I mean.  Regardless, while Daddy's adjusting to all this, I'm sad but at the same time, extremely proud and relieved.  This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired "Like" me on Facebook Visit the My…

For some reason, Emmett was up around 6am this morning.  Unfortunately, for Lizze and I, he spent a large part of his morning melting down.  I have no clue why he was upset. All I know was that he climbed into our bed and proceeded to scream and carry on.  He's fine now and got ready for school without a single issue. Meltdowns this early in the morning seem to sorta set the tone for the day. It's not a pleasant way to be woken up. We're doing our best to salvage the morning and get the boys off to school without further incident. I really hope that they have a good day.  :-) This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES…

Gavin will likely miss school on Thursday and instead visit the Cleveland Clinic.  He needs to see Dr. Moodley because of his recent hospitalization and evolution of his symptoms.  We also need to discuss John's Hopkins and how we can expedite the process.  I also have to go to war with Gavin's insurance company because he absolutely needs his Clozapine prescription filled ASAP. However, after dropping the boys off at school, I'm going to meet my Mom at the park and we are going to get in a few miles to begin the day. Something I have to do now that I have the time, is get my health back and keep losing weight.  This will work out pretty well and I think it will be a fantastic way to…

We have a potentially very serious medication issue with Gavin. Today  we received another denial letter from his insurance company. This time it was about his antipsychotic medication, Clozapine. They are refusing to pay for his prescription because his dosage is higher than the FDA approved amount.  I'm not sure how we are going to address this.  The only reason this is even an issue is because Ohio has forced everyone on disability, to choose an HMO provider and transition  from straight Medicaid. What we need to find out, is whether or not this denial was sent before or after the attempt at a medical override. This is a very serious problem because Gavin has less than a days worth this medication left. If this gets messed up, it's a…

The boys had fantastic days at school today.  Elliott and Gavin did amazing.  While Lizze and I were signing the IEP paperwork, the kids came into the office.  When Emmett walked in and saw us, he began sobbing.  It wasn't his typical cry either.  It was like his body was so overwhelmed that he had to purge and purge he did.  He did so for almost 20 minutes. He did really well today but apparently he made a mistake while writing his name in art class, right before he was brought to us in the office.  Eventually, he told us that he had made a mistake and was upset with himself. I think he was just overwhelmed by everything today and his little soul could only take so much.  Either…