Gavin will likely miss school on Thursday and instead visit the Cleveland Clinic.  He needs to see Dr. Moodley because of his recent hospitalization and evolution of his symptoms.  We also need to discuss John's Hopkins and how we can expedite the process.  I also have to go to war with Gavin's insurance company because he absolutely needs his Clozapine prescription filled ASAP. However, after dropping the boys off at school, I'm going to meet my Mom at the park and we are going to get in a few miles to begin the day. Something I have to do now that I have the time, is get my health back and keep losing weight.  This will work out pretty well and I think it will be a fantastic way to…

We have a potentially very serious medication issue with Gavin. Today  we received another denial letter from his insurance company. This time it was about his antipsychotic medication, Clozapine. They are refusing to pay for his prescription because his dosage is higher than the FDA approved amount.  I'm not sure how we are going to address this.  The only reason this is even an issue is because Ohio has forced everyone on disability, to choose an HMO provider and transition  from straight Medicaid. What we need to find out, is whether or not this denial was sent before or after the attempt at a medical override. This is a very serious problem because Gavin has less than a days worth this medication left. If this gets messed up, it's a…

The boys had fantastic days at school today.  Elliott and Gavin did amazing.  While Lizze and I were signing the IEP paperwork, the kids came into the office.  When Emmett walked in and saw us, he began sobbing.  It wasn't his typical cry either.  It was like his body was so overwhelmed that he had to purge and purge he did.  He did so for almost 20 minutes. He did really well today but apparently he made a mistake while writing his name in art class, right before he was brought to us in the office.  Eventually, he told us that he had made a mistake and was upset with himself. I think he was just overwhelmed by everything today and his little soul could only take so much.  Either…

We have to get to the school early today to pick up the boys because we need to finish Gavin's IEP and sign off on testing for Emmett.  They asked us to come in about 15 minutes early, so we can get that stuff done.  Not a great deal of fun but it's quick and painless, so I can't complain. I can't wait to see how the boys did on their first day. :-) This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach me via email, please Contact Me

Today was going so well and now it's been flush down the proverbial toilet. In yet another epic parenting fail, AEP has come out to shut us off due to my inability to keep up with the bill.  This is my fault and I'm working really hard to address these problems.  To AEP's credit, the technician that has come out to shut us off was very nice and treated us with respect.  I appreciate that. Now that the boys are in school full time again, I can devote my time to bettering our situation.  My new job is going to begin paying off in the immediate future and all I have to do is make it through until then. This is not something unique to my family.  There are  countless…

I just got a call from the Cleveland Clinic.  They've bumped Gavin's appointment, to see Dr. Moodley, up to Thursday of this week. It was originally scheduled for later this month.  This is in response to his recent hospitalization. Dr.  Moodley will likely remain the point man for Gavin's condition, but he wants us to be seen by John's Hopkins ASAP. I imagine that we will discuss this in more detail on Thursday. However, as I'm writing this, I'm realizing that this appointment might now work out because we still have to get the tire replaced on the van. Right now we're riding on a donut and can't make the trip under thes  conditions. I'll just have to bump that up the list of priorities. This site is managed almost…

The moment has finally arrived and I haven't cried yet.  Let me start at the beginning.  Today was the first day of school for the Gorski clan.  This wasn't just the typical return of the school year either. This morning marked the beginning of a new journey for all of us.  For the very first time ever, all three of our boys will be in school, 8 hours a day, 5 days a week. This is a really big change for all of us but one that ushers in a new era of possibility for both Lizze and myself. For the first time in 10 years, we finally have a break. Today has gone as smoothly as I could have hoped for.  Elliott was up and dressed by 6am.  He…

When we ended the previous school year earlier this summer, we were in the middle of a very unpleasant investigation by Child Protective Services, in response to a spite call. Over summer vacation, we were able to put that behind us. As this new school year begins, I'm reminded of just how far we've come.  We will begin the new school year on a good note.  :-) This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach me via email, please Contact Me