The week ahead: IVIG Infusion and calls to John’s Hopkins

As we begin the second week of school today, we also begin a busy week. After I get the boys to school today, I have to continue working on arrangements to get Gavin out to John's Hopkins ASAP. Tuesday morning, I will be taking Gavin to Akron Children's Hospital for September's IVIG Infusion. Tuesday also brings with it the return of OT for Elliott, followed closely by OT, PT and Speech for Emmett and Gavin both..hopefully anyway. Lizze has 2 appointments as well. With any luck, the week will be kind and everything will go off without a hitch. The biggest concern I have for this week is how Gavin will react to the IVIG Infusion since his most recent crisis. With his number having recently changed, we haven't had…

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An Honesty Post: My special needs family and why I can’t “just go get a job”

Let me start by saying that I'm very grateful for everyone's concern.  I think that it says a lot about our community when other wise strangers, can relate enough to someone's life that they show compassion, worry and understanding. Having said that, there are a few things that I need to clarify because there seems to be some confusion. This likely is a result of me being uncomfortable discussing this subject for fear that it will come across wrong to my readers. I've said many times that I only share the financial struggles because without that knowledge, it's hard to put some of what you read here into proper context. I also believe that by sharing things like this, it helps to raise awareness about one of the struggles involved…

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Miracles happen: My kids with #Autism eat something new

There are two reoccurring events every day that I dread.  Feeding my kids with Autism, lunch and dinner. In reality, I should say attempting to feed my kids with Autism, lunch and dinner.  Why not breakfast? Simple.  It's easier to find one or two cereals that aren't sensory offensive. My kids would be happy with eating dry Ramon Noodles for every meal, every single day. While it's true that I can always fall back on that, as their father, I'm always trying to encourage healthy eating habits. At the very least, I wish that I could expand upon my options or rather their options.  In other words, I wish that I could find more foods that they are okay with and willing to eat. As a reminder, this is all…

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6 Ways to Detect Early Signs of #Autism

Some people say that autism is becoming more prevalent in today’s society, and others are saying that it is just easier to find these days. Whatever the case may be, these six wayscan help you to detect early signs of autism. Regular Doctor…

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Today’s #Autism Victory

I have to give mad props to my oldest son Gavin. He received his new National Geographic Kids magazine in the mail today.  Instead of going to his room and reading it with is visibly challenged friend Sonic the Hedgehog, he stayed downstairs and read the magazine to his little brothers.  Words can't express what it felt like to watch this.  :-) This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired Visit the My Autism Help Forums To reach me via email, please Contact Me

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