As many of you know from my earlier post, the boys did a walk for Cancer today. They went to Cleveland with my parents and had a really good time, for a really good cause.  They had a really good time and behaved very well.  :-) However, when they came home, my parents pulled Lizze and I aside to let us know that they were concerned about Gavin.  They noted that Gavin was very pale, sweaty and clamy on the car ride up. These are all signs of a pending Autonomic Crisis. After the walk, he complained of chest pain again.  :-( My Dad also made the comment that Gavin's not all there anymore. He's slipping and it's becoming more and more apparent to those around him.. The latest example…

Lizze is really, really not doing well today.  I don't often focus on her health but I think I will try to keep everyone updated. For one thing, people are always asking and Lizze has had a harder time keeping up with her blog lately as her health gets worse. Anyway, she's not been sleeping well at all. Between the temperature change, the hot flashes, stomach problems and her ever present, unrelenting migraine, she doesn't sleep well at night.  For some reason the hot flashes are worse at night. We're hoping that by the end of the month we will have a better understanding of her gastroparesis and perhaps a treatment plan.  This could provide a dramatic improvement to her quality of life.  She finally fell asleep about an hour…

Sometimes as special needs parents, we need to celebrate the little things in life that some would likely overlook.  For example, who would celebrate that fact that their 5 year old is wearing a sweatshirt? For starters, I would.  Mr. Emmett John, not only dislikes sweatshirts but hates clothes that are baggy. This is a baggy sweatshirt and he's actually wearing it. This is really big for him and for us because as the winter months approach, we have more options for clothes that he will actually wear. Great job Emmett.  :-) . This site is managed almost exclusively from my Galaxy S4. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired "Like" me on Facebook Visit the My Autism Help Forums To reach me via email, please Contact…

Lizze and I will have a pretty decent break today.  The boys are on their way to a special walk for Colon Cancer this morning. I may honestly just go back to sleep and be unproductive today because I'm completely exhausted. I hope that all of you are finding this weekend to be as peaceful and relaxing as possible.  :-) This site is managed almost exclusively from my Galaxy S4. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired "Like" me on Facebook Visit the My Autism Help Forums To reach me via email, please Contact Me   Setup of an account with Bluehost and I get paid. If your looking for a host for your website or blog. Click the image below and check out Bluehost. It's what I use.

In the morning, the boys will be going to Cleveland with my parents to dona walk for Colon Cancer. They're all excited to go.  Lizze isn't feeling well and I have to work, so we are both going to stay behind.  This will be good for the boys and I know they will have a good time.  :-) This site is managed almost exclusively from my Galaxy S4. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired "Like" me on Facebook Visit the My Autism Help Forums To reach me via email, please Contact Me   Setup of an account with Bluehost and I get paid. If your looking for a host for your website or blog. Click the image below and check out Bluehost. It's what I use.

This coming week is going to be a busy one.  On Monday, Lizze will be at the Cleveland Clinic having an endoscopy done. To be honest, I'm not entirely sure why we are doing this but it has to do with her gastroparesis and they will be doing biopsies to officially rule out Celiac Disease. Unfortunately, this will be happening smack dab in the middle of the day. We're having to make arrangements for the boys to come home from school.  What sucks is that they don't give you the time of the procedure until 2 days prior and when you have a special needs family, that can make making arrangements difficult. Hopefully, everything will go smoothly and we will get nothing but good news.  :-) This site is managed…

Are you a special needs parent? Do you ever feel hopeless? Well, you're not alone. I'm right there with you. I go through periods of time where I get so overwhelmed, that I feel like things will never get better. Like I'll never find a way to manage everything. It's not easy to feel this way and still find the strength to pick up and keep fighting. Right now I'm in one of those places where I just don't even know what to do next. I feel like every obstacle is insurmountable and there's no way that I can keep things going.  In my case, I'm worried about a great many things that I have no control over and so I think that leads, or at least contributes to that…

Lizze is having a really rough day.  Her migraine has her in tears but she's pushing through it, so she can be as much help as possible.  I sent her to bed a little while ago. The boys for the most part, are doing really well today.  Elliott woke up at the buttcrack of dawn with a sore throat and climbed into bed with us.  He's since feeling better. Gavin is having a great day behaviorally but is otherwise struggling.  He's fallen or hurt himself at least twice today. The falls are usually going up the steps and his injuries are nothing significant but they upset him. All I can do at this point is encourage him to slow down and take his time. He tends to move too fast…