I don’t think Gavin’s doing well today

Gavin's been asking weird this morning and by weird I mean autonomically unstable. He's been really wobbly and disoriented. I'm not really sure what's going on but I had him go lay down for a little while and with any luck, that will stave off a pending Autonomic Crisis. Please keep Gavin in your thoughts and prayers today.  This site is managed almost exclusively from my Samsung Galaxy Note 3. Please forgive any typos as auto-correct HATES me. ;-) Follow @Lost_and_Tired "Like" me on Facebook Visit the My Autism Help Forums To reach me via email, please Contact Me

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The closest we ever get to respite

The boys will be going to Lizze's parents for the day.  I'm pretty sure they're excited to be going, as that's all they've talked about this morning.  :-) Lizze and I will try to get a few things done but also get some rest at the same time. The only thing that really needs to get done today is a bit of laundry, so the boys have clean uniforms for school tomorrow.  This is the closest we ever get to respite.  This site is managed almost exclusively from my Samsung Galaxy Note 3. Please forgive any typos as auto-correct HATES me. ;-) Follow @Lost_and_Tired "Like" me on Facebook Visit the My Autism Help Forums To reach me via email, please Contact Me

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Emmett’s latest and greatest Lego creation

Emmett was busy making a new Lego creation today.  I'll be honest with you, I have no idea what this particular creation is but Emmett was really excited about it.  This site is managed almost exclusively from my Galaxy S4. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired "Like" me on Facebook Visit the My Autism Help Forums To reach me via email, please Contact Me   Setup of an account with Bluehost and I get paid. If your looking for a host for your website or blog. Click the image below and check out Bluehost. It's what I use.

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Operation Hope: No end to the crushing heartache

It's been a really long time since I've updated you on Operation Hope. For those of you new to Lost and Tired and our story, Operation Hope is what I've dubbed our quest to find answers to Gavin's fragile health. Part of the reason I haven't shared any updates lately is because it's pretty depressing to live through and even more depressing to rehash.  Having said that, it's really hard for people to understand if I don't write about our story.   There have been some changes recently to both his medications and his restrictions.  To be honest, both are concerning to me but it's one of those things where we won't know until we try.  The reduction in medications is because the goal is always the most minimal use of…

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Priceless

Despite how completely awful Lizze feels at any given moment, she always tries her best to be there for the kids.  This was my favorite picture from yesterday.  Lizze and Emmett were locked in a snuggly hug.  Priceless........ :-) This site is managed almost exclusively from my Samsung Galaxy Note 3. Please forgive any typos as auto-correct HATES me. ;-) Follow @Lost_and_Tired "Like" me on Facebook Visit the My Autism Help Forums To reach me via email, please Contact Me

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INTERVIEW: #Autism Speak with Miss Minnesota

Dozens of Minnesotans marched around Mall of America to raise awareness about autism Saturday morning. More than 2-million Americans deal with the condition. Raising awareness about it is a cause that hits the hearts of many, including Miss Minnesota…

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My kids with #Autism showing compassion

One of my absolute favorite things in the world to do is hang out with my boys.  This morning I was laying on the couch because I'm still in a great deal of pain. The boys decided that they wanted to help me feel better.  Their way of making me feel better is to pile on top of me and snuggle.  This was incredibly painful, especially because they can't seem to sit still.  Having said that, I would happily endure that, over and over again because I love to snuggle with my boys.  Further more, I love that they are able to show compassion, even if they don't fully understand what's going on.  One of the things that I have tried to show them is that as human beings, we…

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I have medium hopes for today

I woke up today and was actually able to get myself dressed.  Perhaps I have have my expectations set incredibly, but I'm pretty darn excited. Earlier this week, I irritated an old back injury and left myself completely incapacitated. I woke up this morning and surprisingly, was able to get myself dressed and walk myself down the steps.  I have medium hopes for today because I've learned not to have high ones.  ;-) This site is managed almost exclusively from my Samsung Galaxy Note 3. Please forgive any typos as auto-correct HATES me. ;-) Follow @Lost_and_Tired "Like" me on Facebook Visit the My Autism Help Forums To reach me via email, please Contact Me

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