Gavin was hard at work creating a new Lego masterpiece.

My kids have some really unique and even weird interests. Check this out to see one of them. :-)

Gavin just woke up after a 3 hour nap and appears to be doing a bit better.   So far so good.  My expectations aren't high and if he's feeling even the slightest bit better, I'll gladly take it.  :-) This site is managed almost exclusively from my Samsung Galaxy Note 3. Please forgive any typos as auto-correct HATES me. ;-) Follow @Lost_and_Tired "Like" me on Facebook Visit the My Autism Help Forums To reach me via email, please Contact Me

This site is managed almost exclusively from my Samsung Galaxy Note 3. Please forgive any typos as auto-correct HATES me. ;-) Follow @Lost_and_Tired "Like" me on Facebook Visit the My Autism Help Forums To reach me via email, please Contact Me

Gavin's been asking weird this morning and by weird I mean autonomically unstable. He's been really wobbly and disoriented. I'm not really sure what's going on but I had him go lay down for a little while and with any luck, that will stave off a pending Autonomic Crisis. Please keep Gavin in your thoughts and prayers today.  This site is managed almost exclusively from my Samsung Galaxy Note 3. Please forgive any typos as auto-correct HATES me. ;-) Follow @Lost_and_Tired "Like" me on Facebook Visit the My Autism Help Forums To reach me via email, please Contact Me

The boys will be going to Lizze's parents for the day.  I'm pretty sure they're excited to be going, as that's all they've talked about this morning.  :-) Lizze and I will try to get a few things done but also get some rest at the same time. The only thing that really needs to get done today is a bit of laundry, so the boys have clean uniforms for school tomorrow.  This is the closest we ever get to respite.  This site is managed almost exclusively from my Samsung Galaxy Note 3. Please forgive any typos as auto-correct HATES me. ;-) Follow @Lost_and_Tired "Like" me on Facebook Visit the My Autism Help Forums To reach me via email, please Contact Me

Emmett was busy making a new Lego creation today.  I'll be honest with you, I have no idea what this particular creation is but Emmett was really excited about it.  This site is managed almost exclusively from my Galaxy S4. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired "Like" me on Facebook Visit the My Autism Help Forums To reach me via email, please Contact Me   Setup of an account with Bluehost and I get paid. If your looking for a host for your website or blog. Click the image below and check out Bluehost. It's what I use.

It's been a really long time since I've updated you on Operation Hope. For those of you new to Lost and Tired and our story, Operation Hope is what I've dubbed our quest to find answers to Gavin's fragile health. Part of the reason I haven't shared any updates lately is because it's pretty depressing to live through and even more depressing to rehash.  Having said that, it's really hard for people to understand if I don't write about our story.   There have been some changes recently to both his medications and his restrictions.  To be honest, both are concerning to me but it's one of those things where we won't know until we try.  The reduction in medications is because the goal is always the most minimal use of…