Blog - Page 64 of 1611

It’s incredibly frustrating when the answers you get aren’t the answers you want

I met with Gavin's genetic counselor this afternoon, to go over the results of his exome sequencing. This has been a long time in the making I want to give a huge shout out to Probably Genetic for all their help. Essentially, what I learned is that we really didn't learn a whole lot. I say that because we didn't find answers to the many questions we've had for a very long time. That happens and it's for one of two reasons. The first reason being that there's nothing wrong and the second being that science simply hasn't identified everything yet. There are limits to our scientific knowledge but as that knowledge expands, answers may appear as the data is reinterpreted. When I say we didn't learn anything, that's not…

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September 26, 2020

Gavin / My thoughts / Probably Genetic

I can’t stress how important this is

I have a meeting tomorrow that's 15 years in the making. This week, I received an email from Probably Genetic, informing me that Gavin's genetic testing results have come in. The report I received explains that there was a one mutation identified but I don't have the expertise to fully or even partly understand what it means. It does appear to have something to do with electrical activity and his heart. Genetic counseling will provide a great deal of insights and explanation of everything. I have a video conference in the afternoon where I'll get whatever information is I can, digest it, talk to Lizze and figure out what to do. This is the first time in 15 years that we have found something on a genetic level and hopefully,…

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September 24, 2020

My thoughts

It’s a big day for my kids

The boys are leaving to spend a couple days with their mom. It's been a couple months since they've been able to have actual, physical contact, due to COVID. In fact, they've only been able to visit two times since the March 5th, this being the third. It's been hard on everyone but Lizze and I decided at the onset of COVID that the priority must always be safety. There are people at high risk in both our houses and that has to be taken seriously. Agree or disagree, it's what we feel is best at this time. Anyway, Lizze and her household have just finished up a fourteen day quarantine and I'll be dropping the boys off in a little while. They wanted to schedule the drop off after…

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September 23, 2020

Read more about the article What is wrongful death? And how do they happen?

Photo by Artyom Kulakov on Pexels.com

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What is wrongful death? And how do they happen?

A death in the family is always an unexpected loss. But when that loved one was taken from you in sudden and even avoidable circumstances, it can make the wounds of grief just a little bit deeper. When a wrongful death occurs, it's not just the emotional fallout that a family has to deal with but the financial side of things too, as well as looking after any dependents and even the possibility of seeking justice on behalf of their loved one. You can speak with a wrongful death lawyer (Alexandria) if your loved ones’ death could have been prevented or avoided. Here we'll explore how an unexpected and wrongful death can impact the loved ones left behind and the most common wrongful death scenarios. Medical malpractice Photo by Artyom…

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September 23, 2020

What Is IPTV and How Can It Benefit Families?

When you are a single parent, cost cutting becomes a pastime. You want to know how best to reduce your expenditure without buying low quality or unreliable goods and services, right? But cutting costs can be difficult for the family if it negatively affects your kids, their opportunities and their comfort at home. Particularly for large families, cost cutting is a delicate balance which can be pretty hard to achieve. Keeping your family supported as a single parent is financially, physically and emotionally tiring - but it can be done, with determination and love. What does this have to do with IPTV? Read on to find out how IPTV can slash your television costs and leave more budget for family fun, bills, your home and your life. Image credit. What…

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September 22, 2020

Gallery / My thoughts

I think he’s out of shits to give

I've been noticing a behavioral change in Gavin and I feel comfortable saying that it began during COVID lockdown. I've stated that Gavin’s been doing really well and that's absolutely the case. What I'm writing about today is more annoying, disruptive, and a bit curious than anything else. Here's what's happening. Gavin startles very easily and I mean very easily. That's not a problem in and of itself. The issue is that when he's startled, he now screams at the top of his lungs, and sometimes falls out of his seat or throws whatever is in his hands into the air. This happens across the board. He doesn't watch things that are even remotely scary. Tonight, Emmett was playing the Xbox and he was looking around a room. When he…

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September 21, 2020

My thoughts

My kids visit their mom this week and I have nothing planned for myself

I took the kids hiking today. We found a new trail, where we don't run into anyone else, which is why we don't have masks on in the picture. We had our masks with us in case we came across other humans but we didn't. The kids are going to see their mom this week and I don't think they could be any more excited. Assuming everyone is still healthy, the kids will go to school on Wednesday and I'll drop them off around 2pm. I have absolutely nothing planned for my time while the kids are gone. It would be ideal for me to have a list of things I want to accomplish but the reality is that I don't get breaks very often right now. The kids will…

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September 20, 2020

COVID19 / Emmett John / Lockdown / My thoughts

Shoe shopping online for my #autistic son

Let me just start by saying that I hate shoe shopping for Emmett, even in the most perfect of circumstances. I love Emmett to the moon and back. The issue is not that I don't want to spend the time or money, it's that sensory processing disorder makes finding things like shoes, socks and clothes difficult at times. Although, as he gets older, he's doing so much better. It can still be frustrating though, for both of us. I've talked about this a million times before but people suffering from SPD, and I use the word suffering on purpose, face challenges that the rest of us can't even imagine. In Emmett's case, he's very sensitive to things like texture, taste and smell. He doesn't like the feeling of clothes on…

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September 20, 2020