Emmett just hit a fever cycle

Recently, there was a delay in refilling Emmett's antivirals that he takes for his fever disorder. With all that had been going on with Gavin recently, I'd opted to use this opportunity to see how he did without them. He did really well for about 2 weeks but just in case, I addressed the issue that was preventing his script from getting refilled. He's got several of these in his mouth. They're very painful and related to his fever disorder. Unfortunately, Emmett hit a fever flare for what I think is the first time since lockdown. I can't remember the last time he had a flare up. It appears that he needs to stay on the Acyclovir going forward. It only took 2 weeks for the mouth sores to come…

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How To Bounce Back After Life Knocks You Down

The fact is that every once in a while life will knock you down, and when that happens the most important thing that you can do is know how to get back up again. Of course, some ‘knocks’ are easier to get up from than others; sometimes one of life’s dips is related to something fairly simple and easy to fix, making it easier to come back from. However, when one of life’s dips is related to something a little more serious or complex, getting back up can be a little more difficult.  However, just because you find yourself in a difficult or upsetting situation, the doesn’t mean that you cannot bounce back from it. What it means is that bouncing back from whatever has happened may be that little…

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We’re without a car for a few weeks

We are officially without a car for the next few weeks. I dropped it off at the body shop this afternoon and my Mom was kind enough to bring me home. It was a bit weird because I've not been in a car with anyone other than the kids in 2020. The ride was less than 10 minutes. We kept the windows down and we both wore masks. I had my KN95 and my main cloth mask on cause I normally keep them in the car and I wanted to bring them home in case I needed them. I wanted to protect my Mom and myself and my kids, so we took this brief ride very seriously. I'm so grateful that my parents are there to help when I need…

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One last trip before for the next few weeks

I took the boys to Quail Hollow for one last hike before the car goes in to get fixed. It's going to be a few weeks before I get it back. We don't go anywhere very often but it sucks anyway. We found an entirely new trail and it took us roughly 2.5 miles start to finish. Everyone did awesome and the weather was perfect. We were so far away from anyone else that we were able to take our masks for a little while and smell the Fall leaves. ☺ There's an abandoned house in the park that I've always wanted to know more about. You can see it in the gallery above. The trail we took today lead us right behind it. You can see the path we…

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Round 3 of blood work for Gavin

It's been a long day but a pretty good one. I didn't write yesterday cause I was not really in a place where I felt like writing. I spent the time connecting with other parents instead and that was really cool. Yesterday, I had to take Gavin for another round of blood work, this time focusing on his liver. I hate doing this because it puts us in contact with other people but it was a necessary evil. Gavin's levels have been off and we have to keep following up until we figure it out. I needed to get this done ASAP because the car goes into the bodyshop this weekend and I'll be car-less for a few weeks. Gavin has an appointment with gastro coming up and we need…

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Read more about the article 6 Safety Tips For Children With Autism While Away From Home
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6 Safety Tips For Children With Autism While Away From Home

A few hallmark symptoms of autism spectrum disorder include impulsive behavior and a lack of fear. These two symptoms together pose issues when keeping children with autism safe. Many times they fail to see how a situation is potentially dangerous. The biggest worry for parents of children with autism is how to keep their child safe while away from the home. Some common potentially dangerous situations include wandering and what’s referred to as “bolting” (spontaneously sprinting away to avoid a sensory trigger or uncomfortable situation). Both wandering and bolting can lead to dangerous situations that include drowning and running in front of traffic. According to Psychology Today, 48% of children with autism run from a safe environment. Of the deaths associated with children with autism under the age of 14,…

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Remote learning is going okay but I’m maintaining perspective

Moving on.... So we had a pretty decent day today. Elliott had to get his Chromebook swapped out, so Lizze and her Mom picked that up and took care of that for us. That was super helpful and I'm grateful. School is going better and the boys are starting to get into something that when you squint, sorta resembles a routine. At best, it's a bastardized routine but progress is progress. I'm not going to apologize for letting my kids be comfortable while they're learning. This whole thing is a nightmare and I have zero concerns about them chilling on the couch, bed or anywhere else that makes learning a positive thing. As long as the kids are appropriately dressed, in good lighting and they're teachers are happy with their…

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‘Pink And Gray – Calming Color Combo For Your Home

Black and white, orange and blue, red and gold… we are all aware of the classic color combinations. And, there is no denying they look great! But, if you really want to take your interior design skills to the next level, you should consider unusual color combinations.  Pixabay License Free for commercial use No attribution required When you get unusual color pairings right, you can give your home the X factor. One color combination that can look incredible is pink and gray, and yes, we are serious! Read on to discover all you need to know.  You don’t have to take our word for it; when Pantone announced that their color of the year a few years ago was Rose Quartz and Serenity everyone was taken by surprise. This is…

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