Blog - Page 49 of 1611

This isn’t supposed to happen

It's Gavin's 21st birthday and we were off to a good start. His IVIG Infusion supplies showed up and he immediately went to work. Whenever he gets his supplies, I've taught him to put together kits containing everything he needs for each infusion. This serves a dual purpose. It helps him to learn how to organize, maintain and keep track of these life saving supplies. The other thing it does is help to streamline the infusion process as well as helps him to take inventory when the supplies are first received. It's important to take this inventory because sometimes items are missing and he needs to let me know immediately so I can get them ordered. This morning he put his kits together and he had enough supplies for eight…

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January 18, 2021

My thoughts

Today didn’t go as planned

As with everything else in my life, today didn't go as planned. We were going to celebrate day two of Gavin's birthday and we did but with a some changes. We decided not to bake a cake today because Lizze is dropping one off on Monday. Instead, Emmett baked his cookies and we watched a movie. Gavin really enjoyed himself and that's all that matters. Emmett did a fantastic job of baking what he calls chocolate snap cookies. These are hands down my favorite cookie he makes. Keep in mind this kid is 12 years old and doing this completely on his own. He baked sugar cookies and then melted chocolate for the top. He's really in disbelief over the fact that we like them as much as we do.…

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January 17, 2021

My thoughts

A fun little update

It's been an interesting weekend thus far. The boys came home yesterday from a visit with their Mom. They all had a great time and I'm so glad we were able to get this safely worked out. There was some transition challenges but it's a small price to pay for everyone to get a chance to be together. We managed to get through all those challenges and have settled into Gavin's birthday weekend. He turns 21 on Monday and while I'm in disbelief at the amount of time that has passed, it's an amazing moment. We're going to spread out the celebration over the next few days. We had his birthday dinner tonight, which was his favorite Chinese takeout. I had talked it over with the boys and they decided…

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January 16, 2021

Divorce / My thoughts

I got a break for the first time since September

It's been a couple days and I wanted to share something before I crash for the night. This will be brief because I'm exhausted and I'll try to follow up later. The other day, I called Lizze to find out if they'd been locked down for at least 14 days. They had been and so I suggested making arrangements for the boys to go over for a few days. It's been since September and that's really hard on her and the kids. We had decided to shut visits down until COVID was under control. That's the only reason she hasn't seen them. Since the insurrection at the Capitol Building and the current threats for this coming week, as well as how much worse COVID is getting, I thought we should…

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January 16, 2021

My thoughts

A few concerns have bubbled to the surface today

Gavin missed his IVIG Infusion yesterday because his supplies never showed up. I called the pharmacy and they are apparently waiting on a new order from his doctor. They expect to have that some time today and then we should get the supplies this week sometime. This always makes me nervous and I know it upsets Gavin because not only does it break his routine but he also misses an infusion. As much as he hates these life saving infusions, he hates missing them even more. He's feeling a little better knowing that he might have his supplies before his next scheduled Infusion on Friday. Mr. Emmett hasn't been feeling well today. He ended up in my room at some point last night because he had a stomach ache. He…

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January 12, 2021

My thoughts

We escaped for a little while today

The kids had a mixed bag kind of day because life is just getting to be a bit much lately. I got the kids to school and we made it through the school day. I mean, it's remote learning so we didn't have to go very far but it can still be a challenge. Everyone is current on their school work and that's awesome. I'm so proud of my guys. There was a good bit of fighting today because, as I said, they're just done with everything going on around us. They tested my patience and I'm not afraid to say that. After Elliott finished up class, I decided to take them for a short hike. We were only out for about an hour and didn't run into any another…

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January 11, 2021

Gavin / My thoughts

Communicating with my adult #autistic son

I've mentioned this a few times before but Gavin and I have a unique relationship. We're very very close and direct with each other. I've learned over 20 years that Gavin needs people to be very direct with him. If you give him any room to interpret the meaning in your words, he will often struggle to understand. That's just part of who he is and that's okay. From the outside, it can seem like I'm being mean but in reality, I'm not. If I used this approach with someone else, I might agree but sometimes we have to cater our approach to the needs of the person we're trying to approach. Here's an example of what I'm talking about. If Gavin is talking too much, which he's known to…

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January 10, 2021

Photo by Sam Lion on Pexels.com

6 Unique Ways to Treat Yourself

The internet is full of self-care tips, but sometimes, a kale-infused smoothie isn’t enough to get you back on your feet. While face masks and spa-trips are fun, they are the only ways to show yourself some love. Here are six unique ways to treat yourself. 1. Get a Subscription Box Subscription boxes are great because the treat never ends! No matter what you order, you’ll receive something exciting at your door every week, fortnight, or month. Have a look around for some cool, unique subscription boxes such as scentmagic.com, which sends you a month’s worth of designer perfume every month. Photo by Sam Lion on Pexels.com 2. Spend Time with a Pet Spending time with a pet actively boosts your mood. Plus, they’re adorable! If you fancy treating yourself,…

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January 10, 2021