Why is this so fucking complicated?

The goddamn pharmacy didn't get Gavin's Clozapine filled in time for the second week in a row. This is very time sensitive and it's in a set schedule. Gavin gets his bloodwork done on Monday or Tuesday and they pull the labs Tuesday afternoon. The script gets filled and delivered by Wednesday afternoon. It's really not that complicated because it's the same thing each week. I made several phone calls at the beginning of the week to ensure everything was in order. I even called late Tuesday afternoon to remind them to call for the labs and make sure the script was either ready for pickup or delivered by Wednesday afternoon. I was assured this wouldn't be a problem. Thankfully, we have an emergency supply to cover for disruptions like…

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I’m not sure what we’re dealing with but we survived the day

I survived the day. That's something to celebrate because there were times I didn't think I would. ☺ Emmett seems to be doing better but Elliott went to bed not feeling well. There's all kinds of shit going around the school, so that may be what's going on. At this point in time, no one's puking and that makes me happy. I hate puking and I hate when the kids puke. Puking doesn't gross me out or anything like that. It's easy to aspirate when puking and that's not a good thing. I learned all these things when I was a medic and some are etched into my brain. I'm not sure what the morning holds but if they aren't feeling good, I'm not going to push them. There's too…

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A massive meltdown set the tone for the entire day and that sucks

It's been one of those days where I'm not sure how we've made it this far. lol For the first time in awhile, Emmett almost didn't make it to school because of sensory processing issues. Those issues were of course related to his clothes. Truthfully, I don't think he was feeling well. He was complaining of a headache and tummyache but I don't know if that was behind his struggles or just influencing them. By the time we worked through it, we were an hour late to school and they had missed breakfast. We stopped by McDonald's on the way so the boys could get something to eat before dropping them off at school. Emmett was hanging on by a thread already but when McDonald's screwed up his order not…

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3 Ways You Can Integrate Technology Into Your Children’s Education

This is a collaborative post and does not necessarily represent the views and opinions of this blog or its owner.   If you rewind time 25-30 years, you will see a world that barely included technology as part of everyday life. Children, in particular, were sent out to play after breakfast, with the only instruction being that they had to return home when the streetlights came on. It can be very difficult, therefore, for parents to want to integrate technology into the day to day life of their children when they didn’t have it in their own youth. Image Source Bringing technology into the world of your children is more than just choosing the pretty iPad covers and deciding which model to go with to optimise their experience. There are…

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Updates so big they almost don’t fit

There are a few things I need to update you all on. Some are bigger deals than others but all remain important. They aren't in any particular order of importance. It's just the order they popped out of my head. ☺ Gavin's spending the night and most of the day tomorrow with his grandparents. They will be celebrating his birthday with him and taking him shopping. Gavin was really excited and I'm happy to see him that way. An odd thing happened this morning. If I hadn't seen it myself, I wouldn't believe it. Emmett decided to wear socks to school today. This kid hasn't worn socks for the better part of two years now. I've no idea what brought this on and whether or not it was a one…

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The Formula: How We Need To Be A Great Carer For Our Dependents

This is a collaborative post and therefore doesn't necessarily reflect the views and opinions of the blog or its owner Pxhere We all have the same battle in life, the one of time. For those parents who have special needs children, the struggle is all too real. The needs of the child will forever be a weight on the parents’ shoulders, and as they age, the common issues start creeping. From health problems to physical problems, or any sort of decline, we all have to deal with these issues. For those that have children who rely on them to do everything, or for those that are in a position of care, stress is a very real emotion. And it's not just about the day-to-day care, thoughts turn to how you…

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When your special needs child turns 18

I just got a letter from Social Security in regards to Gavin. He and I have an appointment with social security on January 25th in regards to Gavin becoming an adult. Part of Gavin turning eighteen means that things like this are going to come up. We're currently working on permanent guardianship, which will continue to allow us to manage Gavin's life when he can't do so for himself. Gavin's nervous about going because he's never had to go to one of these before and he's concerned about shots. I'm not sure where that came from but in his head, he think the social security worker will want to give him a shot. This appointment will be the first that we have to attend in order to keep Gavin's affairs…

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They finally went back to school

Thank God there's school today. I love my kids, I truly do but there schedule has been so messed up since before Christmas break, they need to go back. I need them to go back. There were closing around us but we weren't one of them. We got the kids off to school, and both Gavin's and Lizze's blood work done. All I need to do today is call the pharmacy and remind them to call for his lab results so they can deliver his Clozapine in the morning. Gavin's good until Wednesday night. So far so good. The day could definitely be worse but I'm grateful it's not.. ☺

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