Autism and Discipline: How do you manage?

Disciplining your kids can be tough for parents sometimes. But what if your child has Autism? Navigating the world of Autism is like trying to put one of those generic puzzles with no picture together. You are often times flying blind. I can't tell you how many times I have felt lost and defeated. In our case with Gavin, he is a quagmire wrapped inside an enigma. He has so many other mental health issues that it really makes things difficult. How do you hold him accountable? What are the standards and are they set to high or to low? What is he actually capable of doing? These are all questions my wife and I have asked for years. Just when we think we have it figured out we realize…

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How Autism effects parents

How does Autism effect parents? This might be a delicate subject but people need to understand in order to support. In my experience there really 2 major categories. There are parents with kids Autistic from birth and there are parents with kids that regress into Autism. This post will be in several parts. Below is part 1. ---Please understand that I'm by no means trying to compare pain here. I'm trying to help bridge the gap and help us understand one another.--- I can only speak personally about the regressive form of Autism. This form of Autism usually strikes around age 2 or 3. You don't suspect anything at all because up to this point everything was perfect. All the milestones were reached on time. You have your whole life…

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Emmett John and Sensory Problems

EJ has been really struggling with sensory related things. He is not tolerating clothes right now very well. It have evolved into he doesn't tolerate his diapers either. He acts like they actually hurt him. We have removed tags and try to find clothes without pronounced seams but the diaper situation is going to be a problem. I have been looking for my "Easy Button" but I seem to recall them being re-collected when they diagnosed my kids. But if anyone has an extra they want to send me that would be great :) LT

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Another long day……

Gavin was in rare form today. He was in "I'm not going to listen to you" mode all day. If I didn't know better (maybe I don't) I'd swear he was doing it on purpose. He just seemed to be all over the place today. I lost track of how many times he ended up in his room to decompress. I knew it was going to be a long summer but I just didn't know how long. LT

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The Drama that comes with autism

If you are familiar with autism you probably already know there can be quiet a bit a drama that goes along with it. Gavin can be the king of drama at times. Today he got in the middle of the dog and cat "playing" and he got a tiny barely visible scratch from the cat. Not that it didn't hurt but he started screaming like he had just been stabbed. Sensory issues are at work here to but honestly it was drama. He was fine for a minute then realized he could squeeze it to the point it would bleed. By bleed I mean basically turn red. As soon as he saw the "blood" he totally lost it. He kept squeezing so more blood appeared and then he would scream…

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Join the Lost and Tired Network.

I started a community as an extension to this blog. I would like to invite everyone to check it out. I want it to be a safe place for all of us to go and share our stories. You can post what you need to post. I ask that you keep it clean and respect everyone. I want this network to be able to provide information and support to those in the community who may be struggling. Sharing your story, good or bad may give someone the hope and strength they need to get up and move forward. Anyways, I'm not sure how this will work out but you have nothing to lose. Here is the link Lost and Tired Network

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Knowing is Awareness

Since I started this blog I have wanted to really be able to help others going through what we are going through. There are so many families out there that are "Lost and Tired" just like us. There are also families out there that are just now beginning the journey into autism and have no idea what to do. It's overwhelming and honestly quite terrifying. I want to be able to reach out to these families and let them know they aren't alone. I remember what it was like when I first heard the words "Gavin is autistic". I felt my whole world come crashing down. That was five years ago. Now we are going through that again with EJ. Along the way we have learned a tremendous amount. We…

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