Gavin crisis 8/04/2010

I spoke with Gavin this morning and he seems to be in good spirits. He hasn't slept in 2 days though. He is spending his time trying to beat Sonic Heros. He is going to be there for the foreseeable future. This is not easy on anyone right now. As a friend of ours put it yesterday we are burning the candle at both ends. We will be home for awhile as ER and EJ are both sick. I have been receiving emails about sending Gavin a card. He would love the cards and we will collect them and drop them off as we get them. It would make his day. Again this is only if you want to. I am just responding to the requests for the information. That's…

0 Comments

Gavin crisis 8/3/2010 10:30pm

We are all home. Gavin is still at the Cleveland Clinic. We get his MRI results in the morning. I really thing they are going to keep him for a while. The risk of sounding like a bad parent this isn't happening the way it was supposed to. Gavin was supposed to get help and we were supposed to get a much needed break. That is not what's happening. Gavin is 1.5 hours away and we have to keep driving back and forth. Lizze is not able to take her meds when she is going up there and that has a hugely negative impact on her. I end up staying with the other two kids and that is beyond exhausting. Everyone that has watched even one of them can't do…

2 Comments

Gavin crisis 8/03/2010

Today has been bell already. We got a call about 6am this morning saying gavin is having mri this morning. gavin will need to be sedated in order to have his mri. One of us needs to be present so we scrambled to make arrangements. If we had known we would have been there last night. Lizze and her mom left for Cleveland this morning. Both ER and EJ are sick and my back is out. For some reason Sprint shut our phones off this morning. They don't know why it happened but it did. It took me forever to get that fixed. They were supposed to replace Lizzes blackberry but never shipped it out last week. So after 2 days of battling now we have 2 coming which will…

3 Comments

Gavin crisis update

Okay. Thank you for all the thoughts and prayers. Gavin is currently at the Children's Hospital at the Cleveland Clinic. He has been there since Satuarday. He has been having a reaction to one of the medications he absolutely has to be on. This medication was causing ticks. They started in his face and on Saturday they had spread to his entire body. We called the doctor and he said he must be seen. That started the process and here we are. He had to be cut off cold turkey because his life was in danger.  I can't begin to tell you what it's like to see your son in that condition. He has lost control over his body and was falling off the bed. After 12 hours in the…

3 Comments

Gavin update

We have been in the ER for 12 hrs now. Gavin is coming unglued right now. We have no phone service here at the Cleveland Clinic. It's midnight now and after a few rounds of ativan he still won't relax. We are putting off the Psych hold for a day or so. They want to rule out any type of brain damage so he's going to be in pediatrics neurology for the next day or so. As soon as he's admitted and asleep Lizze and I are supposed to go home. She will return in the morning with her mother. Once he is in the children's psych hospital they will leave to come home as thats what they want us to do.  I don't know how Gavin is going to…

11 Comments

Pray for Gain

Very quickly. Gavin is being committed for emergency medical stabilization. Don't what is happening but we are on our way. He has taken a turn for the worse. More when I can.

4 Comments

Gain update

Gain has begun with full body twitched. It's like he has lost control over his entire body. The meds to counter this just don't work anymore. We have to increase the lithium to manage the bipolar but I don't know what to do about the full body twitched. We will try to get him in on Sat morning.

0 Comments

Thanks for praying for Emmett

Thank you for praying for Emmett John today. I have lost count of how many tweets, emails,texts, comments and facebook messages I have received today. We are truly lucky to have this kind of support. Thanks again for everything.

3 Comments