Gavin crisis update 8-18-2010

I'm not going to lie, Gavin is driving me crazy. He will not stop talking., even when I'm clearly not paying attention. He tells me every single thought that runs through his head. Most of this stuff doesn't make any sense to me. He's regressing into his imaginary world more and more. I haven't even been writing because I"m just to exhausted anymore. Things are pretty bad for us at the moment.

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Emmett John

Emmett John saw his Gastroenterologist yesterday and he now has an endoscopy scheduled for the 9th of September. We did not think that was going to happen. We thought they would toy with is reflux meds. The doc also went a step further and pulled EJ off his reflux meds which means he will be screaming all night. The sleepless nights began last night and it was a bad one. EJ is in so much pain when off the meds that Lizze and I are going to keep him on them and get a second opinion. This doc had a God complex and didn't really listen to us at all. Skipping everything else and going to something rather invasive doesn't sit well with us. We are going with our gut…

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Manic Monday

I have to try to keep a sense of humor about everything or I'll completely lose my mind. That said, Gavin is manic. He can't stand still of even stop talking. He is talking so fast you can't follow what he is saying and on top of that he is jumping from topic to topic randomly. I have actually gotten a headache from listening all day. I feel bad but I just can't take it right now. We will finally be getting a break because my mom and sister are taking the 2 youngest to the zoo for the day. I don't think it will end up being much of a break. We talked to the nurse in the psych unit today while at the hospital for Emmett John and…

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The plan

We spoke with Gavin's doctor and decided to increase his meds at bedtime just a bit. I'm doubtful this will work because he is only on 1mg of resperidol and it took 8mg the last time he was on it. We are supposed to call if things get worse or by Wednesday which ever comes first. My fear is he's going to have to go back. The safety issues here are very serious. Gavin is now following these hallucinations around the house. He is talking about defending himself now. What if one of the kids becomes involved in whatever Gavin has going on? Or worse Gavin sees them as something that is out to get him. Not only do we have to worry about Gavin's sanity and peace of mind…

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Fear

Lizze and I are already considering the idea that Gavin will have to go back to Akron Children's Hospital. He is clearly not stable and we can't help him. No amount of "Gavin it's not real" seems to cut it. We are also going to have to consider safety issues for everyone. Gavin needs relief from this ASAP. We are calling the doctor first thing in the morning. Please pray for him. Posted with WordPress for BlackBerry.

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Heartbreak

We just found Gavin crying in his room. He has been seeing things all night. Apparently he saw a "rat face" in his door way. He got up and followed it into Elliott Richards room and saw a "giant rat" on his wall. The rat jumped off the wall and ate all of the skin off his left arm. What the hell do we do with that? Posted with WordPress for BlackBerry.

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The art of speaking with an Autistic child

The art of speaking with an Autistic Child. I wrote this article to help give less experienced persons a few tips on speaking with Autistic children. Site Seems To Be Having Some Issues.  Please be patient. Please check it out and share. As always, every time you subscribe to or even click to view my work you are helping to support the Lost and Tired family. So if you like what I write please share the links and subscribe to my page. Thanks Again.

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Rare moments

A rare moment of peace and quiet. This almost never happens but when it does it's nice. Posted with WordPress for BlackBerry.

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