Fit 4 Autism Update

I wanted to update everyone on my Fit 4 Autism movement. As of today 10/31/2010 we have walked,ran,hiked and biked over 9890 miles. That is is an AMAZING accomplishment. The truly amazing part is that we only have about 12 active members right now. Think of what we could accomplish with many more people. I want to say special THANK YOU to my new friend in Europe for joing the cause and giving a a massive boost.  Thank you to everyone involved. I came up with the idea of ”Fit 4 Autism“ a few months ago. It’s kind of a play on word’s. However, it's way more then that. As special needs parents we need to be able to take care of our children for as long as possible. The…

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Emmett John status update

Emmett John is our pre-verbal 2 year old little blessing. Emmett John has always struggled with communication. We are learning or trying to learn sign language. Emmett John has no way to communicate with us or us with him. It's honestly heartbreaking to watch him struggle. Lately we have been seeing more and more meltdowns. He is shrieking now when he gets upset and that's something new in the past few weeks. We have to get the earily intervention in place. Unfortunatly that will most likely require us to triage our kids. In other words we are going to gave to prioritize. We are going to focus our limited resources on those who will receive the most benefit. That is Elliott and Emmett. Thy have the brighest future. All the…

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A very long night

Elliott was up almost all night. His tummy was upset but he didn't vomit anymore so that's a good sign. I believe Emmett slept through most of the night. Lizze sent me to bed and kept the kids away so I could get a few hours of sleep. She's so good to me. Thanks honey. These words are posted via Wordpress for Android

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10 Things my Autistic child wishes you knew

10 Things my Autistic child wishes you knew July 21st, 2010 12:01 pm ET   1. I'm sorry I have fits but I'm not a spoiled brat. I'm just so much younger on the inside then I am on the outside. 2. I'm easily overwhelmed because I see and hear everything. I hear the lights hum and clock tick. Everything is so loud it makes my head hurt all the time. My eyes hurt from all the bright lights. 3. I'm not stupid, I'm actually very smart. I just don't learn the way you want me to. Please learn about Autism so you know how to help me better understand what you are trying to teach. 4. Please don't be mad at mommy and daddy because we don't come over…

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My poor babies

Well Elliott and Emmett are both sick now. Elliott went most of the afternoon without vomiting but can't keep aything down now. Emmett isn't vomiting but has the same intestinal "issues" Elliott has right now. These guys are completely miserable and it's going to be another very long night.  Thankfully Gavin is at Grandma's tonight and not around for this. He doesn't handle this type of situation very well. I had to call my parent to make a run to Giant Eagle to get Gingerale, Kids Motrin and Benadryl. I think Elliott is vomiting do in part to some post nasal drip. The Benadrul should clear that right up. Needless to say, Trick or Treat will be cancled for these guys. We were going to hold Gavin back from going anyway…

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I recently realized something. (A very honest post)

I have been wanting to share this for a while now but have been affraid to admit this. By sharing this I am really opening myself up. This is not easy to write the words that explain how I have been feeling. I understand how this is going to sound but if you have had a child taken away by Autism you may be able to relate. For a long time I have been struggling with Gavin, that's no secret. I have less and less patience with him or really more his behaviors. Since I have been walking I have had lots of time to think. I have come to very profound realization. I resent Gavin. I know how bad that sounds so let share why I feel this way.…

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Not good…

...but kind of humerous is suppose. Well for the 2nd night in a row Emmett John climbed into bed with us. I never sleep well when he's there cause he kicks. Elliott was up every few hours and Gavin didn't go to bed until 1am. I woke up around 5 am because for the 2nd night in a row Emmett John pee'd on me. I get all that cleaned up and Lizze stayed up and let me go back to sleep. Elliott comes into the room and lays down with me which was fine. Next thing I know he is vomiting all over me.  I have a bad feeling about today.

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