Ok. I can't believe I'm sharing this but maybe someone will benefit from my story. If not I'm sharing anyway. I have been explaining just how tough things have been and how they just keep getting worse. One of the positive things that has happened for Emmett is the early interventionists that have become involved. That said, here's my honesty for today. We weren't able to go to Thanksgiving today because Gavin wouldn't do well. It's not about what my family would think because they all understand but honestly dealing with the aftermath is just to much. He would be overstimulated for days. So we made the decision to send Elliott with my dad so he could have some "normal" time and get away from the chaos. That was bitter…

I hope everyone has a safe and happy holiday. Thanks for making this blog so successful. Thanks for spreading Autism awareness and thanks for listening when I need to talk. Thank you for your kind words, thoughts and prayers. God knows we need them:-) Posted from WordPress for Android

I know I'm supposed to be better then I'm. I'm supposed to be stronger and able to hande anything.Right now I feel like I'm being buried alive. Lizze's conditions are getting worse. We have to figure out how to get her life back. Her quality of life is non-existant.  She tries to push herself but she is limited to what she can do anymore. The sleeping issues are becoming more dfficult to manage. She is so tired all the time and never gets any relief from it. Gavin had a HORRIBLE day. He had a meltdown today that was so back I couldn't stop shaking. Elliott had come to u and said that Gavin was using his pen. All we did was call Gavin down and he just started screaming…

Isn't it enough that Gavin has to struggle with Autism? I was just sitting here and it hit me. WTF does it mean to not have enough cerebral spinal fluid? How is that even possible? Isn't it a closed system? In theory it would have to be leaking somewhere or possibly an obstruction somewhere. Maybe he isn't producing enough? This is a pretty big deal. We will be researching the crap out of this until we go back in January. There aren't many tests more painful then a spinal tap. Especially for an Autistic child terrified of needles. He will have to be completely sedated. There is NO WAY he would cooperate with that. We will make sure that it isn't done unnecessarily.

So we met with thev neurologist this morning from the Cleveland Clinic. Long story short he is very worried about Gavin's loss of motor control. We were referred to a movement disorder specialist at the Cleveland Clinic that he works with. While we were there they took a ton of blood. Thy are testing him for everything he has never been tested for before. He is running a full genetic work up. Fragile X is one of the concerns he is testing for. He wants a spinal tap done because he is concerned Gavin doesn't have enough sprinal fluid. He is concerned because Gavin's left tempral lobe shows reduced activity and no one knows why. The spinal tap is on hold until we meet with the movement doctor in January.…

Gavin easily had one of the worst days of school yet this year. He lost it when his teacher offered to help him with something he was struggling with. He began screaming and punching himself in the face and head. They tried all the usual stuff to defuse him but nothing worked. He just esculated. They couldn't even get him down to the office. Luckily no one besides himself was hurt and that was all self-inflicted. Lizze talked to the teacher after school and told her the best thing to do is get Gavin away from the other kids and engage him as little as possible. If he hits himself let him go cause it's all manipulation. The docs at Akron said if he's not bleeding and he hasn't passed…

I have a new article up at the Examiner. It's a review on the van repairs we had done. check out here. As always, every time you subscribe to or even click to view my work you are helping to support the Lost and Tired family. So if you like what I write please share the links and subscribe to my page.

The patience required for raising Autistic children is immeasurable. I can nver seem to live in "the now" because I am always having to think 2 steps ahead. I feel like my patience with Gavin after the past 6 years is finally starting to disappear. He just complicates everything. It would be one thing if it were out of his control but so much of what he does to disrupt everyones lives is willful. I used you be the one saying he had no control over these things but anymore it really seems like he is choosing to do some of these things. There are times that I feel that he is without control of his actions but those times are fewer and fewer. There is so much speculation as to…