In the next 14 days Emmett is going to undergo a barium study. Basically he swallows barium and then he is x-ray'd to track the path it takes. They are looking for anything mechanically wrong hat could be causing the issues he's having. Next he is have an endoscopy. They said because he is having such unique problems and has had the issues for so long that this is the next logical step. They will go in and take biopsies and do further testing for celiac. They a concerned because he has intolerance to several different things that aren't common to have together. Part of the reason this is necessary is because Emmett can't communicate what is going on. He can't say "my tummy hurts". He won't even point to…

We are at Akron Childrens for Emmett, one of the many trips we have this week alone. Today is the Gastro.. Emmett is having xrays done to check his "poop level" in his colon. Then more bloodwork and then an endoscopy. They are suspecting celiac which is not something we wanted to hear. My mom has that and my grandmother and aunt had it as well. Not something pleasant to deal with for him or us on top of everything else he's dealing with. The fact that Emmett can't communicate just makes everything so much more complicated. He can't tell us what's going on so we have to guess. Because Emmett has had reflux since birth. The doc said 95% of kids with reflux out grow it by their 1st…

So I am huge into technology. I used to develop custom ROM's (operating systems) for Windows Mobile 6.xx.xx smart phones. A few months ago I made the switch to Android but didn't do much with it. Over the past week I released some custom ROM's for the Sprint Epic 4G. You can find my thread here at the developers website ppcgeeks. I have also started designing custom themes as well. When you have 3 kids on the spectrum you need to have something to take you away for a little bit. You need to find a hobby to distract yourself with and unwind to. I hope you all have something you can do to escape with.

One of the things that drive me crazy with Gavin his how he handles pain. Gavin will beat himself (literally) and not complain but then pitch a fit over the tiniest injury. For example yesterday he came down stairs freaking out because "I bumped my thumb on my action figures head". He wasn't hurt but was freaking out. If he thinks he hurt himself, say his finger for example, he will squeeze his fingure until it's bruised in an attempt to make it bleed. Then when it eventually bleeds or just bruises he meltsdown. I just don't get it. Today alone I have lost track of all the "injuries" he came to show me. The biggest problem aside from annoyance it the example being set. Now Elliott is doing similar…

So Elliott and I were drawing the other day. Things like fruit and cereal bowls. Then Elliott out of nowhere draws this picture. When he shows it to me he's so proud of himself. Through his giant, proud smile he explains "Daddy this is a picture of you sitting on the toilet". Where the heck did that come from? He just kills me sometimes...but seriously we are going to have to have a talk with him about this. I mean really, my arms are totally out of proportion and my heads on backwards.. ;-) And for the record we value our privacy in this house so I have no idea where this came from....Just thought it was cute..and I said I would share, good, bad or even slightly disturbing... :-)

Elliott is sick again. This poor kid just can't catch a break. Posted from WordPress for Android

Lizze went to get an ultrasound on Tues to see what is causing the pain and cramping she has been experiencing. We learned she needs to have a partial hysterectomy. For some unknown reason after Emmett was born her uterus was damaged and became heart shaped. She experiences a lot of pain as a result. Dr. D doesn't know how this happened. Even if she hadn't already had a tubal she wouldn't be earlier this year she would be unable to have anymore children.  We were not expecting this at all and really are still kind of in shock. We knew she had some cysts (which are pretty common) and thought that was the cause of the pain but it isn't. This is a major (but very common) surgery so there is…

Emmett was seen by the Geneticist this morning. The are testing him for everything. Their primary concern seems to be Fragile X. That seems to be the current theme for us as of late. They were explaining to us how rare our situation is. He said the reason they want the genetic workup is because of how uncommon all this is.  We should have the results prior to Christmas. All in all it was a productive visit. On the way up I told Lizze that when they ask if Lizze and I are brother and sister I was going to tell them yes. I though it would be funny but she made me promise not to. To me it seems like a ridiculous question that deserves a ridiculous answer but I guess…