One thing I neglected to mention earlier was that Gavin's diagnosis has changed. Lizze noticed that on Gavin's chart (type thing) that his diagnose is now listed as schizo-effective disorder instead of bipolar. This actually makes much more sense then a diagnosis of bipolar disorder. However, it is closer to a diagnosis of schizophrenia. This isn't a good things by any means, however, at least we have a better idea of what's going on with him....

So Emmett has picked up 3 signs so far. He says "more", "please" and "thanks you". So we found something he will eat and that's kosher hotdogs. Not that its a great thing to eat but he's losing weight so it's something. Anyway, Emmett ate his 2 hotdogs and came over to Lizze and signed "more". Lizze asked him what he wanted more of. He responed "more","more" and that's it. Finally he got frustrated and pulled the half chewed up hotdog out of his mouth, stuck it in her face and signed "more". Wow. Just, wow.

Emmett had his first day of "pre-school". He seemed to really like it. I personally have mixed feelings as one of the staff ladies rubbed me the wrong way. However, if they can help him I'll get over it. We are still going to persure better options but until then we feel better knowing he is getting help....

As you know we had to cancel many of the early intervention programs for Emmett due to health concerns that needed to be addressed. We called today to see when we could get him back into the program. They told us this afternoon would be just fine with them. That's a huge relief as we were afraid we would have to wait. We only have a few months left of "early intervention" as he ages out at 3yrs of age. Hopefully this will help him and we can finally start to move forward a little bit.

Lizze met with her new psychiatrist yesterday morning. This is for help with the PTSD and fibromyalgia. She's been waiting forever to get in to see this lady. Appointment goes well until the doctor says that she can cure Lizze or everything inside of 6 months. Now by everything she means PTSD, migraines,fibromyalgia,acid reflux and the sleep disorder hypersomnia. Oh and she claims Lizze doesn't need the hysterectomy either. Now this through up all kids of red flags. To my knowledge there is no cure for PTSD. You can move on or move past it but it will always be there cause you cannot undo what happened. Also there is no cure for fibromyalgia, no one even fully understands wha causes it. So is this lady a quack? She also…

Gavin went to see Dr. R (his psychiatrist) this afternoon. Dr R, says that Gavin is psychotic, again. This means he has lost touch with reality and confuses whats real with whats imaginary. I knew we were going in that direction it just really sucks to hear the Dr. R say that. It makes it more real in that makes sense. We are waiting to hear when he will go to the Cleveland Clinic for the CFS (cerebral spinal fluid) study. They have to schedule the OR and Gavin will go completely under for the process. Once the CFS is collected DR. R will work with Dr. G (the movement disorder specialist) to get Gavin back on his anti-psychotics safely. Until then we will just have to wait and hope…

We received a call from Akron Children's yesterday (apparently while we at the Cleveland Clinic cause we noticed the voicemail last night).  The neuro developmental pediatrician wants to meet with us right away. Emmett had an appointment in March but the message said we can't wait that long. I can't tell you how this feels. We know it's bad news...Otherwise they would just tells us everything is ok. It's one thing to know your child is Autistic but it's another thing to "KNOW" your child is Autistic. Unless you've experienced something like this first hand you just can't imagine how it feels. It's like my entire world is made of glass. The moment those words come out of the doctors mouth everything around me just shatteres to pieces. All I want…

This is a picture of Emmett at the appointment with the allergist. He is holding Lizze's hand and walking the long hall way...