We are still wating to hea back from Dr. R as to what we should do. Gavin is doing fine now. He did leave some marks on his forehead I just noticed. Not as bad as the last time but still an obvious problem. Since this afternoon Gavin has been a "perfect angel". Not one problem. I wish I knew what we were supposed to do. Posted from WordPress for Android

We haven't heard back yet from Dr. R.... I don't know if Lizze and I should just make a decision and go? After all the redness on Gavin's head went away there are no visible marks. So that's a good thing. Is that enough of a reason to not take him? He seems perfectly fine now, like nothing ever happened (which is extremely frustrating, because everyone else is still dealing with the stress that caused). I just wish there was a simple way to know what the right thing to do is. There are so many things to consider. The emotional toll this with take on everyone (honestly that applies no matter what we do). The simple logistics of everything. I can't be in two places at once. Is anything they…

Emmett"s genetic work up came back Monday. I forgot with everything else going on. But everything came back good. Even the Fragile X. So that"s is something to be thankful for.

Gavin got into an argument with Elliott over something silly. Gavin freaked out and started scratching his forehead up again as well as hitting himself in the head. We have a call into Dr. R but my guess would be admittance into the psych floor at Akron Children's Hospital. I hate the idea of sending him but I don't know what else to do. We can't let him comtinue to hurt himself and also can't allow third to be an example for the other kids who are already beginning to imitate the behavior.  I hate being in this position... Posted from WordPress for Android

Mr. Emmett John decided he would pick up his shoe and throw it at the TV. I have an LG 47 1080p 120Hz LCD. We got if a few years ago before things got this bad. He busted the screen loose from the frame. LG mounts the screen in a weird way. It feels almost like a projection screen. So it would be like throwing a shoe into a projection TV. It just knocks the screen out. I'm not even that angry, really. Just kinda in shock and surprised it took this long. Awesome...... Posted from WordPress for Android

In an ironic twist of fate Lizze couldn't sleep last night. I got to sleep in until 8:30am.... I so needed that........ Posted from WordPress for Android

A lot has happened today. So here are the cliffnotes. Basically Lizze had an appointment with one of her neurologists today (sleep specialist). We were discussing what we had going on and what Lizze was experiencing. He still says no narcolepsy. We got on the topic of the new psychiatrist and meds. He said she should not have put Lizze on these meds. It also turns out that you shouldn't mix Paxil and abilify. So he has contacted the psychiatrist and is going to find out what she was thinking. Anyway, I expressed concern over the risk of blood clotts with her current condition. He checked her legs over right away and that's when he found whatever is going on with her leg. Although luckily it turned out to be…

Everything checked out ok. They don't know what is going on but her perfusion is ok. So now we wait. Thank you so much for your prayers....... Posted from WordPress for Android