The “Gavin effect”

Gavin has been challenging for most of his life. If you read back far enough you will see that we have tried to shield the other kids as much as possible from his behaviors. There have been times we considered placement in order to ensure the best interests of Elliott and more recently Emmett. Things did improve eventually. Today we find ourselves in that same place again. As I have shared many times here, Gavin likes to self-injure. Every time he is questioned about something or makes a mistake he hits himself. We have very aggressively tried to quash this because we COULD NOT ALLOW this spread to the other boys. Well despite our best efforts it has spread. Elliott has now begun (for about a week or so now)…

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Fit 4 Autism 3/19/2011

Todays Fit 4 Autism efforts were about 2.5 miles... My goal is to be back up to 6+ miles a day by the end of spring.             Click the above image for details...     For more information about Endomondo and joining the "Fit 4 Autism" cause visit my "Fit 4 Autism" page..... You can also view the "Fit 4 Autism" team here  

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Important Clarification…(A very honest post)

He used to draw pictures of our house on fire with Lizze and I burning alive. Gavin was about 5 or 6 years old at the time. When he was finally put on anti-psychotics those things sort of just went away. Do you know what that feels like to fear your child because I do.

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I’m really trying……..

  I'm trying so hard to be patient but it's getting more and more difficult... Gavin is REALLY struggling and God forgive my, he's going to push me over the edge. I'm really starting to feel the preasure and I don't know how much more I can take.... Tonight Gavin had oatmeal for dinner because eariler he was causing problems with Elliott. The only rule he has with eating the oatmeal is he has to eat politely and safely. Tonight he didn't do that. He was shoving the oatmeal in his mouth to the point where he gags. We corrected him once and the following time he was told he would have oatmeal again in the morning. He didn't like that so the meltdown ensued..... We have to hold him…

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Fit 4 Autism 3/18/2011

I have hopes of encouraging you all to take better care of yourselves and get "Fit 4 Autism". I will post my daily efforts of getting into better shape...... This is a sat image of my path tracked via Endomondo Pro...... Here are some pictures of the view along the way :)   For more information about Endomondo and joining the "Fit 4 Autism" cause visit my "Fit 4 Autism" page..... You can also view the "Fit 4 Autism" team here..

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There are moments…. (An honesty post)

There are moments that I am just so angry with the cards my family has been dealt. Why do we deserve this? We're good people, not perfect but good. My kids never did anything to anyone. Why are we so unlucky? Why do my wife and kids have to suffer? I look back and wonder what we did so wrong that we deserve this. My wife survived a very abusive ex husband and 10 years in court protecting Gavin from that same abuse and worse (you can use you're imagination there and you wouldn't be far off) . We eventually won but at what cost? Lizze's health is a complete disaster and we all know about Gavin's quality of life. We went backrupt and still owe over $25,000 in legal…

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Preparing for the looming Gavin crisis…..

With Gavin going downhill again we have to begin planning for a hospital stay. I can see this trip happening in the next 30 days (unless the new meds help). We have to make arrangements for the kids and have them in place in the event this happens. The past few times he was in the hospital it happened without much warning. That is to say we hadn't really planned for it and it had a huge impact on us emotionally, physically and finacially. I'm not sure if it would be Akron or Cleveland because ALL his neuro specialists are in the Cleveland Clinic. It would probably depend on who had room and/or if the movements come back due to the new medications. That's another concern I forgot to mention.…

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