Autism, Autism, Autism and Fibromylgia

As many of you know (and maybe some of you don't) Autism is a profoundly dynamic disorder. There are many sides to Autism. Some kids and families do just fine. Some families, mine included, struggle each and every day. Today is the worst day I can remember in recent history. I am so overwhelmed and stressed out that I just can't function properly right now. I'm at the point where I just want to beat my head into the wall just to make it all stop. Let me start by saying that I am FAR from perfect. In fact sometimes I'm as FAR from perfect as one can be. I loose my temper and raise my voice far to often. The reality is that I'm human. I'm a human that…

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Elliott Art

Here is some of Elliott's artwork he wanted to share with you all. Posted to WordPress via Autism Aware and midNIGHT ROM powered Epic 4G

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Clozapine update

We heard from Dr. R yesterday. He has made the arrangements with the pharmacy and they will receive their supply of Clozapine for Gavin on Monday morning. That means we will have to have blood work done on Monday morning in order to get the results in time to begin the new medication on Monday. We have yet to discuss this with Gavin as the anticipation of the blood drawl will cause him a great deal of anxiety especially when we don't know for sure when it will happen. We also received instructions for stopping his current medication, Zyprexa. Hopefully this will be a very smooth transition without any hiccups.

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Emmett is hard at work….

Emmett is hard at work writing his own story. He wants to be just like his big brothers Gavin and Elliott. Isn't he just 2 cute.                       -lost and tired   Posted to WordPress via Autism Aware and midNIGHT ROM powered Epic 4G

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10 Things my Autistic kids wished you knew

Written by me, Rob Gorski (Lost and Tired) and dedicated to my amazingly beautiful children.  I’m sorry I have fits but I’m not a spoiled brat. I’m just so much younger on the inside than I am on the outside. I’m easily overwhelmed because I see and hear everything. I hear the lights hum and clock tick. Everything is so loud it makes my head hurt all the time and my eyes hurt from all the bright lights. I’m not stupid, I’m actually very smart. I just don’t learn the way you want me to. Please learn about Autism so you know how to help me better understand what you are trying to teach. Please don’t be mad at mommy and daddy because we don’t come over for holidays or birthdays. They…

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Defusing a Gavin meltdown…..

I'm posting this video for the same reasons I have in the past. I want people to know what families like mine are facing on a daily basis. We aren't dealing with the "cute and cuddly" side of Autism very often. However, this time I do have another reason for wanting to post this. Gavin struggles every day in almost ALL areas of his life. There are times that he really does try to make the right decision and this is one of those times. Our typical meltdowns can last an hour or more at times but this one was VERY short and I was able to defuse the situation and prevent it from escalating in huge part to Gavin's receptiveness today. While the meltdown is never an "appropriate" way to deal…

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Is Autism Speaks sending the wrong message?

I saw this post by Autism Speaks on Facebook today. They have started a James Durbin vote club on the Official Autism Speak blog. While I personally like the guy and think he's EXTREMELY talented, I'm concerned Autism Speaks may be sending the wrong message. Perhaps I'm looking at this wrong but I just think we have to VERY careful with a situation like this. By Autism Speaks creating a voting club for James Durbin and throwing their EXCLUSIVE support behind the ONLY Autistic contestant on American Idol, they may be sending the message that we should vote for him because he's Autistic. In my opinion that's a very dangerous and even insulting approach to take. I think many people could easily perceive this as a call to vote for…

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Mason Allen Medlam

Hey everyone, if you get a minute (and even if you don't have a minute, make the time) PLEASE visit "Like" and "Share" the Mason Allen Medlam Facebook page. If there was EVER a cause to support this is it. Please help spread the word. I don't typically do things like this, that's how STRONGLY I believe in what they are doing. Here is a direct quote from their page: "On July 27, 2010 my five year old autistic son, Mason Medlam, wandered from our home and drowned in a neighbor's pond. He died two days later. This page is dedicated to raising autism awareness, wandering prevention, and wandering safety. We miss Mason more than can ever be expressed. We love you, Bubby."   -Lost and Tired

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