For those who haven't seen the this earlier, Gavin is very busy creative writing. I offered to record him reading the story so he could watch himself. We decided to post it on the blog because Gavin wants to share this story with all of you. So basically, my Autistic 11 year old decided to step outside of his usual comfort zone to do this for all of you. So I'm  supporting that idea because I think he will grow from this experience and it makes him feel good about himself. Please feel free to leave him POSITIVE feedback. For anyone who has never met anyone with Autism, just watch the videos and you will. Thanks This is volume 1. It's divided into 2 parts:   Mario Party 9: The adventure…

We should be starting the Clozapine at some point today. I had a talk with Gavin about the blood work that would be required every week. He didn't seem to bothered by it but it may not seem real until it actually happens. I explained how this medicine will help the voices and "scary thoughts" go away. He didn't freak out or anything like that. However, to be completely honest, he has probably already forgotten about the conversation. He's already off to a pretty rough start this morning. I thought it best not to remind him and add anxiety to the mix. I truly hope we are making the right decision by doing this new medication.  Posted to WordPress via Autism Aware and midNIGHT ROM powered Epic 4G

Autism is a profoundly dynamic developmental disability. This means that Autism affects each child and their family in a different way. Like snowflakes no two Autistic kids are the same. Likewise the impact on the family unit is just as different. So it would stand to reason that one voice or even a handful of voices would not be able to accurately represent what Autism is to the rest of the world. So why do we let this happen? Why do we let others speak for us? In order to spread true Autism Awareness we NEED a culmination of voices. Part of the reason Autism Awareness is SO ineffective is that we let others speak for us far to often. I don't want someone in a vastly different situation to be…

In general Autistic kids can be VERY easily influenced even by each other.  This can present a problem if one child is more aggressive then the other. In my case Gavin self-injures. He used to be VERY aggressive towards people but not for the past 6 months or so. As I said, he does self-injure and that is presenting a BIG problem that came to a head this morning. Elliott WORSHIPS Gavin and has a tendency to "model" his behavior as well. That is where we have a problem. Elliott is witness to Gavin's self-injurious behavior on a regular basis despite our attempts to shield him from it. Gavin gets very aggressive with himself whenever he gets frustrated.  He has scratched open his forehead and left bruises all over his body. This…

One of the things I struggle with in working with Gavin is generalization. It's pretty common in Autistic kids and definitely an issue with Gavin. Here's an example of what I mean. If you were to take a "typical" child to a store like Walmart or Target and bought them a toy they would likely be excited. If you took Gavin to the store and bought him a toy he would also be excited. The difference is that Gavin would then expect a toy every time he went to the Walmart or Target. He generalizes going to the store and getting a toy. It only takes one time for this to happen and we have spent a considerable amount of time and energy working with this. Generalization carries over into…

As many of you know (and maybe some of you don't) Autism is a profoundly dynamic disorder. There are many sides to Autism. Some kids and families do just fine. Some families, mine included, struggle each and every day. Today is the worst day I can remember in recent history. I am so overwhelmed and stressed out that I just can't function properly right now. I'm at the point where I just want to beat my head into the wall just to make it all stop. Let me start by saying that I am FAR from perfect. In fact sometimes I'm as FAR from perfect as one can be. I loose my temper and raise my voice far to often. The reality is that I'm human. I'm a human that…

Here is some of Elliott's artwork he wanted to share with you all. Posted to WordPress via Autism Aware and midNIGHT ROM powered Epic 4G

We heard from Dr. R yesterday. He has made the arrangements with the pharmacy and they will receive their supply of Clozapine for Gavin on Monday morning. That means we will have to have blood work done on Monday morning in order to get the results in time to begin the new medication on Monday. We have yet to discuss this with Gavin as the anticipation of the blood drawl will cause him a great deal of anxiety especially when we don't know for sure when it will happen. We also received instructions for stopping his current medication, Zyprexa. Hopefully this will be a very smooth transition without any hiccups.