Dear Wednesday, Please be kind to us today. Tuesdays was not really good to us. Wednesday, I'm hoping that you will bring with you Gavin's new medication and some peace for Lizze from her 2 week old migraine. Wednesday, if your just going to bring us more problems like Tuesday did, I'll have to take comfort in knowing that Thursday is right behind you, hopefully bringing with it better luck.
Lizze is home and resting in bed. The hospital gave her some injections that were supposed to at least help with the pain and nausea. Unfortunately, the attempt was unsuccessful. She still has the migraine but the meds did make her sleepy so hopefully she will get some rest tonight and maybe wake up migraine free for the first time in 2 weeks.
We went to pick up the Clozapine prescription this morning and we were met with more "red tape" and further delays. Apparently Dr. R must have omitted a signature somewhere because the manufacturer wouldn't release the medication to the pharmacy. Dr. R was out of the office today so we could not get this addressed today. Hopefully this will get fixed first thing in the morning. We did find out that the blood work results are good for 7 days, so we don't have to worry about having to redraw his blood again. Hopefully everyone can get it together so we can get this done and get Gavin the help he desperately needs. This has been quite complicated already and we haven't even started the Clozapine yet. Here's to hoping tomorrow is the day for new medications. …
Why is Emmett in such a hurry? Emmett has decided he is going to "sometimes" use the big boy potty. So he says potty and stips to his diaper. Then drops the diaper on the floor and runs to the bathroom where he will ACTUALLY pee in the potty. We still have quiet a long ways to go. I also realize that this could stop at any point and go backwards as well. However, I'll take what I can get. Anything is progress...
Lizze is at the hospital. Lizze's has had a severe migraine for almost 2 weeks straight now. Tonight I put my foot down and MADE her go to the hospital. I called her mother and made the arrangements for her to take her because I have to have the kids in therapy tonight. She should have gone a long time ago but she's uncomfortable going to the hospital anymore. This insanity has got to stop. She has the right to NOT be in pain. Anyways, please say a prayer that they take her seriously and actually treat the migraine (if possible) and not just throw pain killers at her. Thanks - lost and tired
Folks, It's been a while since I did another Autism in "Real Life" post but I would like to get that going again. If you are interested in participating please send me an email to: rob@lostandtired.com. Please put Autism in "Real Life" as the subject (for the email filter). I will send you the list of questions and get it published. I truly believe the best way to spread Autism Awareness is by sharing our stories, both good and bad. Thanks -lost and tired Links to previous installments of Autism in "Real Life" http://lostandtired.com/2011/02/19/autism-in-real-life-meet-jen-bush http://lostandtired.com/2011/02/16/autism-in-real-life-the-leaman-family http://lostandtired.com/2011/02/14/autism-in-real-life-meet-jill
We were due to begin the Clozapine yesterday but ran into a snag. For some reason the we had not been added to the "registry" (yes...there is actually a registry for Clozapine). properly. Gavin did get his first of many blood drawls done yesterday. I told him that it was ok to be scared or afraid. It was ok to be nervous. However, it was not ok to hit, kick or scream at the lab techs. I explained that if he could be VERY brave and do his best to keep control over his body I would take him for ice cream when we were done. Gavin was nervous and started to panic in the moments leading up to the actual blood drawl but did not require much assistance to hold him down.…
Yesterday we went to the farmers market to buy fruit and veggies. Lizze hasn't been out in a while so the walking was rough on her to say the least but we got lots of fruit for the kids to munch on. Great deals like an entire flat of strawberries for $2. We got to also spend some time with Emmett. We focused on using ASL with him. He's getting really good with colors and seems to be able to count to 5 (just not consistently but ANYTHING is progress). If you are NOT a special needs parent and even if you ARE, PLEASE DO NOT take anything for granted. Not even the LITTLE stuff. -lost and tired Posted to WordPress via Autism Aware and midNIGHT ROM powered Epic 4G