Autism and the sacrifices we make….

When you have an Autistic child tooth brushing is a challenging task. Sometimes you can't find a way to get them to either brush their own teeth or let you brush them yourself. Other times it just requires a bit of outside the box thinking. Emmett doesn't like his own toothbrush but LOVES mine for some reason. I'm not one to share things like this but if it gets him to brush his teeth then we roll with that. Sometimes you have got to do what you got to do..... - Lost and Tired

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There are “breaks” and there are “BREAKS”

As a special needs parent one of the things we NEVER get is a break. We just push ourselves through the exhaustion and sometimes pain just so we can do it all over again the next day. The kind of breaks we do get we could REALLY do without. I'm declaring shenanigans of Easter/Spring "break".  Can you say "bait and switch" or "false advertising"... If you use the word break in a sentence when speaking to a special needs parent you should be sure to specify WHO is ACTUALLY getting the break, because it certainly isn't us. When someone tells me that "Easter/Spring breaks starts tomorrow", my response is "HELL YEAH!! It'a about damn time. I'll have the kids packed up and ready to go. What time are you coming by to…

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Just so you know……

Just so you know, Gavin coined the phrase "Easter break". He informed me this morning that "today is my last day of school before what I like to call Easter break". He is convinced that he is the first person to ever call the period of time that occurs over Easter, "Easter break". He reminds me of Peggy Hill from the show "King of the hill". She was always taking other peoples well established ideas and taking credit for them. Gavin just kills me sometimes. However, since Gavin is the creator of the term "Easter break" (at least in his mind) we should be seeing some royalties or licensing fee's, right? Yeah...we're saved ;) 

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Hello Wednesday..

Dear Wednesday, Please be kind to us today. Tuesdays was not really good to us. Wednesday, I'm hoping that you will bring with you Gavin's new medication and some peace for Lizze from her 2 week old migraine.  Wednesday, if your just going to bring us more problems like Tuesday did, I'll have to take comfort in knowing that Thursday is right behind you, hopefully bringing with it better luck.

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Lizze is home from the hospital..

Lizze is home and resting in bed. The hospital gave her some injections that were supposed to at least help with the pain and nausea. Unfortunately, the attempt was unsuccessful. She still has the migraine but the meds did make her sleepy so hopefully she will get some rest tonight and maybe wake up migraine free for the first time in 2 weeks.

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Clozapine has been met with further delays….

We went to pick up the Clozapine prescription this morning and we were met with more "red tape" and further delays. Apparently Dr. R must have omitted a signature somewhere because the manufacturer wouldn't release the medication to the pharmacy. Dr. R was out of the office today so we could not get this addressed today. Hopefully this will get fixed first thing in the morning. We did find out that the blood work results are good for 7 days, so we don't have to worry about having to redraw his blood again. Hopefully everyone can get it together so we can get this done and get Gavin the help he desperately needs. This has been quite complicated already and we haven't even started the Clozapine yet. Here's to hoping tomorrow is the day for new medications.  …

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Why is Emmett in such a hurry?

Why is Emmett in such a hurry? Emmett has decided he is going to "sometimes" use the big boy potty. So he says potty and stips to his diaper. Then drops the diaper on the floor and runs to the bathroom where he will ACTUALLY pee in the potty. We still have quiet a long ways to go. I also realize that this could stop at any point and go backwards as well. However, I'll take what I can get. Anything is progress...

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Please say a prayer…

Lizze is at the hospital. Lizze's has had a severe migraine for almost 2 weeks straight now. Tonight I put my foot down and MADE her go to the hospital. I called her mother and made the arrangements for her to take her because I have to have the kids in therapy tonight. She should have gone a long time ago but she's uncomfortable going to the hospital anymore. This insanity has got to stop. She has the right to NOT be in pain. Anyways, please say a prayer that they take her seriously and actually treat the migraine (if possible) and not just throw pain killers at her.   Thanks   - lost and tired

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