Lizze and I sat at the neurologist for the better part of 3 hours. When we were finally seen the appointment went quickly. A few medication changes were about all that really happened. As I discussed previously, Lizze is about out of options when it comes to her migraines. Basically the only one our insurance will cover is something call "headache/migraine infusion" . Essentially what happens is she will be hooked up to an IV for 6-8 hours at the doctors office. They will push drugs in order to break the migraine. This process is repeated for 3 days. The goal is to bring the pain and severity of the migraine down at least a few points. We were also told that sleep issues and stress can make these migraines untreatable. Unfortunately,…

I'm waiting for Lizze to be seen at the neurologists office. I noticed these pictures and thought I would share something about my back injury. I have an L5/S1 left sided herniation that requires surgery. I did this during an EMS run about 10 years ago.

In about 1 hour Lizze and I will be meeting with one of her neurologists to discuss the procedure required to break her current migraine (that has been raging for over 2 weeks) and treat the future ones. Neither the occipital nerve blocker or the headache infusion are pleasant procedures and run the chance of not working. I'll post more details and links about these 2 procedures later today. Thanks for your continued prayers and support. - Lost and Tired

Monday is here and already it's unpleasant. Lizze isn't feeling good and is having a really hard time getting up. This means I'll probably have to bring the kids with me to take Gavin to school. Emmett hasn't been doing well on short trips like this because he expects to get into the van and go somewhere. When I take him to the school and then drive home all he's going to to is scream because it wasn't long enough. Elliott is already super whiny and pitching a fit because he wants candy for breakfast. I'm still exhausted from yesterday and I have to get some work in so I can pay our insurance bill. Feeling quiet a bit of pressure right now and   the way the day is already going…

Today has been one of those days were nothing seems to go right and all my best efforts fall short. I used to love the holidays. I loved getting together with friends and family. Honestly, anymore, it's just easier to avoid them all together. The boys just don't handle them well and the fallout that occurs afterwards far out weighs the pleasure of a nice visit with family. Today was no exception. We decided to go to Easter dinner with my family. By the time we left to go Emmett was already back form Lizze's parents house. So he did actually accompany to dinner which was really nice. Typically the way it works for my family is if they plan dinner for say, 3pm then we will be eating around…

We just got home after only a brief family visit that ended because Gavin was getting VERY anxious. Now we have 3 seriously overstimulated kids and 2 extremely exhausted parents.  Praying the kids go down without much struggle tonight. I hope to catch up on some posts I been working on and sneak in a few more episodes of Lost (just started season 4). Hope everyone had a really good holiday.. - Lost and Tired

Today is a bitter sweet. We will "actually" be going to a family get together today for the first time in quiet a while. I say bitter sweet because Emmett won't be with us. Last night Emmett spent the night at Lizze's parents house so we could have a desperately needed break. They are keeping him today and taking him to Easter dinner. Lizze, myself and the other 2 boys will be going to my family's for Easter dnner. We weren't going to go because we would just spend the entire time chasing Emmett around and Lizze can't physically do it. It would end up falling mostly on me and I could do that at home. People always tell us that they will help us if we come but it…

"My Broken Heart: The bare handed man" will be published next week on The Thinking Person's Guide To Autism. You also find them on Facebook as well. I'm honored that they felt my story was worthy of sharing. I'll post the links when I get them. That's so much for helping me share my story.