I don't think it's any secret that we are struggling. I have been pretty open about our financial issues as well as other physical health issues. While I have shared them here on this blog with you I do my very best to shield the boys from them. I don't want them to know just how bad things are. Lizze and I go to great lengths to ensure the kids are blissfully ignorant of these issues. Autistics kids can be VERY sensitive and prone to anxiety so we don't want them worrying about grownup things. Despite our best effort to shield them from these topics we clearly are missing the mark. Elliott told me something today that tells me just how perceptive he can be. He was asking about the van and why we aren't…

Elliott went with me to take Emmett to speech therapy. We were met with bad news. Insurance will ONLY cover 7 visits this summer. That's not going to work because Emmett needs to get therapy twice a week as requested multiple times already. Right now he's going once a week and it isn't enough. From this point forward we don't even get to go once a week. I WILL BE choosing to fight this battle and if necessary wage war to get him what he needs. This sucks because we are not in a position to take on any more stress. However, Emmett needs help and if we have to fight for it then so be it.  - Lost and Tired Posted using my Epic 4G on the fly and…

As many of you know, Gavin started on the medication Clozapine last week. He seems to be handling it pretty well. I messed up yesterday by forgetting the morning dose but I was able to fix it so we didn't have to start over. Lizze and I did some further research into the possible side effects and discovered that delirium is a possible side effect. That compounds our concerns because we have begun noticing changes in Gavin. He is appearing more confused then normal. He's not remembering dates like he could normally. I was asking him things about his birthday last year that he couldn't remember. This is VERY unusual for him. The question is whether or not the medication is at work here. He was already decompensating prior to the…

With the van sitting dead in the driveway things have become a bit more complicated. My parents are nice enough to let us borrow their car. It solves one problem while creating another. My mom needs the car to work so today I will be literally driving much of the day. I have to get Gavin to school (fully medicated this time). Then I have to take Emmett to therapy. I will leave therapy and immediately go to my parents house to take my mom to work. Then I have to take Emmett in the opposite direction to go to school. I'll wait there for 2 hours and then we will go to pick up Gavin before returning home. Emmett will be dropped off at home and Gavin and I…

Special needs parenting is exhausting, overwhelming, heartbreaking, isolating, demoralizing and STRESSFUL. It's also amazing, beautiful, humbling and rewarding. Despite the constant financial, physical and emotional struggle we get up everyday and keep moving forward. What truly sets the special needs parent apart from the rest? Given the chance and with the FULL knowledge of ALL the struggles we would face and pain we would endure, we do it all over again. While it's a constant struggle and often completely overwhelming, it's also the most rewarding experience I can imagine.  

After a really bad day the one saving grace was opening the mailbox. Inside I found a package sent to me from Cinema Libre Studio. That package contained my review copy of "Loving Lamppost: Livingston Autistic". It arrived this afternoon while my horrible day was unfolding. I'll watch this tonight and let everyone know what I think.... Thanks again for thinking of me and asking me to d this :)  

Today just needs to be over already. How much more can we possibly take much more of this.  It's only Monday so that doesn't hold well for what the rest of the week has to offer us. Today got off to such a rough start and to make matters worse, I forgot to give Gavin his meds this morning. I realized this after we rushed out the door to get Lizze to her appointment this morning. I figured no problem, the appointment is at 9:15am and we should be out no later then 10:00am. I was thinking that we would swing by and pick up the boys from my parents house and then grab Gavin's meds and give them to him at school. An easy fix to a serious problem,…

Lizze and I sat at the neurologist for the better part of 3 hours. When we were finally seen the appointment went quickly. A few medication changes were about all that really happened. As I discussed previously, Lizze is about out of options when it comes to her migraines. Basically the only one our insurance will cover is something call "headache/migraine infusion" . Essentially what happens is she will be hooked up to an IV for 6-8 hours at the doctors office. They will push drugs in order to break the migraine. This process is repeated for 3 days. The goal is to bring the pain and severity of the migraine down at least a few points. We were also told that sleep issues and stress can make these migraines untreatable. Unfortunately,…