How has Lizze been doing?

I thought it was fitting to update everyone on how Lizze was doing, you know, in general. To sum it all up in a few words....not really good. Lizze has been dealing with a great deal of pain lately. Her migraines are also raging almost every day. They are however, are least for now, responding to her pain meds. I suppose if there was a silver lining that would be it. However, there is some bad news as well. Her tremors have gotten worse and are no longer subdued by her current level of medication. As a result the medication treating the tremors had to be increased. It seems to be helping but the side effect is that she is sleeping a lot more. Hopefully this is a temporary thing…

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Happy 31st Birthday Lizze!!!!!

Today Lizze turns 31. In those 31 years she has experienced more then most will in a lifetime. I hope today is peaceful and pain free for her. Even if it's just for today. Love you honey. Happy Birthday - Lost and Tired Post by Wordpress for Android via Nexus S 4G with out the use of proper editing tools and auto-correct. Please Vote for Lost and Tired (just click the link) and help me spread Autism Awareness. Everyone can Vote once a day :)

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Weekend update 7/17/2011

It has been a long and trying weekend. We were suprised this morning with a phone call from my parents. They wanted to take the boys to see my grandma in Y-Town. This was a welcomed suprise as I had a ton of things to do today. Lizze got to sleep most of the day and she needed that. I got the grocery shopping done and then quite a bit of yard work as well. While it was weekend filled with challenge, it was also filled with some progress and that doesn't happen very often. Thanks for the help Mom and Dad. I ALao want to thank Lizze's parents for taking Gavin for a few days this past week. We all needed the break. - Lost and Tired Post by…

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Teach your child to dial 9-1-1 from your cell phone

PLEASE, PLEASE, PLEASE, SHARE THIS EVERYWHERE. THIS IS SO IMPORTANT.  Teach your child how to make the call to 9-1-1 My past experience as a firefighter/paramedic has taught me many things. I'm able to respond to emergency situations that others would struggle with. I was trained to make split second, life and death decisions (literally). I was thinking the other day while I was working on Android4Autism and something dawned on me. Many people out there have cut out their landline or house phones in lieu of their cell phone. That's great and it makes sense. However, in the advent of this gravitation towards new technology, I fear we may have possibly overlooked something very important. Many of us have stickers or magnets for emergency service numbers like, 9-1-1 here in the States (or at least Ohio)…

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Autism, sacrifice and meeting the ever growing needs

My kids, Emmett and Gavin in particular have ever growing needs. Doctors visits and therapies, just to name a few. Much of the time I'm able to meet those needs and others times I'm not.  Typically, I try to take it a week at a time as that's the best I can do right now. Currently, I have arrived at a place where I just can't keep up with the demand. Gavin's recent hospital stays and the van breaking down have disrupted our rather delicate financial balance. At times like these I have to find other ways to make it another week. The boys have a week filled with therapies and at least one trip to Akron Children's Hospital. So the agenda for today is to figure out how to make it…

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Emmett had a LONG day

After a long tiring day of playing, screaming and yelling Emmett finally crashes. While sitting up on the couch AND fully clothed. :-)  Isn't he precious... - Lost and Tired Post by Wordpress for Android via Nexus S 4G with out the use of proper editing tools and auto-correct. Please Vote for Lost and Tired (just click the link) and help me spread Autism Awareness. Everyone can Vote once a day :)

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The most dangerous mistake in Autism

One of the reasons I have this blog was to raise Autism Awareness for my own kids. I wanted to help dispel common misconceptions about what Autism is and how it can affect our children and families. What I have realized is that there are lot's of issues with Autism Awareness and the Autism community itself. I say this not to drum up hate mail (although that's probably unavoidable) or stir up ill feelings but instead to point out what I believe to be one of the most dangerous mistakes made when it comes to Autism. The most dangerous mistake in Autism What is this all too common and dangerous mistake, you ask? The answer is both simple and complex all at the same time.  The most dangerous, Autism related…

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Autism? What are you talking about?

Emmett has made his triumphant return home from my parents house. What does he do the moment he arrives home? I'll give you 3 guesses but if you read this blog regularly, you'll only need one. That's right, he strips down to his skivvies. Clearly, he has had all he could take of his clothes today. Some people come home and have a drink or watch the game to unwind, Emmett sheds his clothes. Autism? Sensory issues? What are you talking about? Certainly none of that here. ;-) - Lost and Tired Post by Wordpress for Android via Nexus S 4G with out the use of proper editing tools and auto-correct. Please Vote for Lost and Tired (just click the link) and help me spread Autism Awareness. Everyone can Vote…

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