Desperate times…….

For the past few days we have all been living in top of each other.  All of our time is basically spent in the living room in order to a avoid the extreme temperatures.  As you can imagine,  everyone has had all they can take of each other.  This morning started out pretty rough and was headed down a road to disaster.  I decided to redirect us back on the right path.  My mom called last night and wanted to hang out with Gavin for a bit today.  So I decided to seize the moment and take the other 2, along with Lizze,  to a movie.  I figured we could get the kids out of the heat for a little while.  Traditionally,  movies haven't worked out well but as the…

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Beating the heat

It's been close to 100f the past few days.  Our 2nd floor is unbearable due to the heat.  We have all been camping out downstairs with our kind of working window air conditioner. The boys don't do well in this heat and humidity. So we just have to do whatever we can to make it more bearable for them. - Lost and Tired Post by Wordpress for Android via Nexus S 4G with out the use of proper editing tools and auto-correct. Please Vote for Lost and Tired (just click the link) and help me spread Autism Awareness. Everyone can Vote once a day :)

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Emmett and his “ABC’s”

I thought this was really cool and so I thought I would share this with you. Emmett, as you are probably aware, is significantly developmentally delayed with a severe language and speech delay as well. The other day while we were are Akron children's hospital, Emmett started naming the letters on this sign. I was is shock at first. This video shows the 2nd time he was doing this and it wasn't nearly as good as the 1st time but he is naming his letters and he just turned 3 a few weeks ago. I think this has alot to do with him using his Android4Autism device and the learning apps installed on it. Just for fun today, I loaded up a blank Word document onto the TV and started…

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Childhood disintegrative disorder: update 7/21/2011

  Childhood disintegrative disorder: The Pending Eval   Our journey down the road to a childhood disintegrative disorder evaluation began this afternoon. After making several phone calls to three different hospitals, I found a doctor at the Cleveland Clinic that deals with this rare condition. I ended up speaking to a nurse and she actually spoke with the doctor himself about Gavin while I was on hold.  After a few minutes she came back on the line and said that he would see Gavin on Monday...this coming Monday. I have mixed feelings about them getting us in so quickly. It's the freakin' Cleveland Clinic, one of the best hospitals in the world, let alone the United States. I was expecting an appointment at least a few weeks out not within 4 days. This hospital…

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Storm damage from the other night

With everything we had going on yesterday I hadn't noticed the storm damage until this morning. The roof leaked again, and only this time it was enough to collapse a large section of the sofit in my old office (now used for storage) . The ceiling is getting worse and the sofit has definitely seen better days. Not sure how or when I'll get to this repair, especially since I can't figure out where it's coming from. The roof is only 2 years old so this is especially frustrating. If I get this fixed I would love to reclaim my office. Until next time.... ;-) - Lost and Tired Post by Wordpress for Android via Nexus S 4G with out the use of proper editing tools and auto-correct. Please Vote…

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Childhood disintegrative disorder

Important note: See Resentment,Grief and Guilt (A very honest post) for background. Reading that first, will help to put the rest of this post into perspective. Childhood disintegrative disorder Today has been one of those days. You know,  the kind that just seems to literally come out of nowhere and yank the rug out from underneath you. I met with Dr. R, Gavin's psychiatrist, this afternoon. It was just supposed to be a routine medication check. We were discussing some of the things that we were concerned about with Gavin. I broached the subject of childhood disintegrative disorder as a possible explanation for Gavin's continued regression. The last thing in the world I was expecting to hear was Dr. R actually agree with me. He said that he has been thinking this was a possibility…

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How a “Sharpie” can provide independence

As smart as Elliott is he still struggled with putting his shoes on the correct foot. For whatever reason it was something that just wouldn't click. So I decided to help him gain a bit more independence the other day and it has worked out quite well. I took a dark pinkish red Sharpie and colored a small oval on outside of each shoe on the sole, as pictured below. Elliott now has zero problems putting his shoes on the correct foot and can now get himself completely dressed. I thought I would share this little trick in case you are having similar issues and haven't tried this yet. It worked well for us. By the time we replace his shoes for the new school year he should have it…

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I was contacted by Google

I was contacted by a project manager at Google last week. He said that he noticed my blog, was reading it and found it very moving. He said he wanted to add me to their authorship program. Needless to say I was really excited, even before I understood what it is. I made the necessary changes to the site and I was notified today that I'm now up and running. It will take a while to index the entire blog as it's several hundred pages but it's happening as you read this. Basically, it's now easier then ever to locate Lost and Tired via Google. If you would like to see for yourself simply click here or do a Google search for Lost and Tired. Now, keep in mind that…

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