Everyone was in bed and I was finishing a few emails that I wanted to respond to. Everyone was sleeping upstairs tonight because it seemed a bit cooler and much more comfortable then it has been the past few days. However, that was short lived as it was clearly still to hot for Elliott. He woke up soaking wet with sweat, coughing and hacking. He had over heated and was having a kind of disoriented night terror type thing. It's such a helpless feeling when you can't console your child. We tried to give him some Benadryl to dry out the runny nose and post nasal drip but he wasn't having it. However, coming downstairs and cooling off has helped. He's now asleep on the couch and no longer coughing.…

One of those days. That about sums it up. Today has just been nonstop appointment after appointment.  Lizze had therapy in the morning then Emmett had speech and OT. I got a call while Emmett was in therapy this morning for computer repair.  So after Emmett was done I had to to pick up the laptop,  get the parts at Best Buy and then fix it.  I got the whole thing done in 3 hours.  I dropped it back off and got home in time to get the kids to Lizze's mom so we could meet with Dr.  Pattie tonight. The kids just just got home Lizze is getting Emmett in bed and I'm letting the boys play XBOX for a few minutes before bedtime.  As soon as I get…

After a physically and emotionally draining day and a restless night reality is beginning to set in. Right now I feel kind of numb and disconnected. My head is swimming with thoughts and fears about this new direction our journey is taking us on. I don't know where we are going now. I've lost all sense of direction. For the longest time, we have been fighting the same exact fight, day in and day out. We never really won the battle but we always lived to fight another day. Some might call that in and of itself a victory. Perhaps under better circumstances I would as well. However, right now I'm just Lost and Tired. I'm completely overwhelmed by what I know lies in front of us and terrified of…

Childhood disintegrative disorder: Very Concerning News   I'm going to keep this short as I'm completely drained at the moment. As you are probably aware, we were at the Cleveland Clinic this afternoon in order to get an evaluation for childhood disintegrative disorder. If you new and need to get caught up, see this post and you'll pretty much be up to speed. We didn't have to wait very long after we arrived to be seen. Gavin was however, very.......um.....talkative. Honestly, he just would not stop talking and it was mostly random, unrelated thoughts. When we met with the pediatric neurologist, she didn't seem to know why we were there. I was a bit confused by that but she was very interested so everything was okay there. We went over Gavin's entire life.…

The Serenity Prayer seems to be broken for me today.  I've said it over and over today but it doesn't seem to help.  I say that because Gavin is still driving me crazy.  Let me clarify,  Gavin's behaviors are driving me crazy.  Just so we're clear.  :-) I'm now in the market for an "easy button".  Maybe that will help. - Lost and Tired Post by Wordpress for Android via Nexus S 4G without the use of proper editing tools and disadvantages of a bastardized version of auto-correct. Please Vote for Lost and Tired (just click the link) and help me spread Autism Awareness. Everyone can Vote once a day :)

We have arrived at the Cleveland Clinic. Now we wait and register. Gavin is on edge and struggling to maintain himself,  if that even makes sense.  He's talking nonstop and can't sit still.  I foresee a meltdown in our future.  I know he's nervous but there is not anything we can do to settle him down.  I think we will have to power through it and hope for the best. Kinda like ripping a bandage off.  - Lost and Tired Post by Wordpress for Android via Nexus S 4G without the use of proper editing tools and disadvantages of a bastardized version of auto-correct. Please Vote for Lost and Tired (just click the link) and help me spread Autism Awareness. Everyone can Vote once a day :)