Gavin fell again tonight, only this time he hurt himself. He fell and scraped his rib cage against a wooded box. Part of me feels like we should limit his movements or wrap him in bubble wrap. I know that sounds comical but I don't know what else we are supposed to be doing. Seriously, should we limit his movements? I know we can't wrap him in bubble wrap but he keeps hurting himself. I'm also concerned that he may accidentally hurt someone else. For example, today Gavin was working on his Mario story and he started dropping his pencil. While he was clumsily trying to get it, he inadvertently flung it across the room. It almost got me in the face. It was a total accident but still....we may…

We met with Dr. H, our kids pediatrician about Gavin's sudden rash. His best guess is they are bug bites. They aren't hives or chicken pox either. He thinks Gavin just had a delayed reaction to the bug bites He also said that the ring around them isn't uncommon. We have sine cream to put on them and that's about it for now. Alright, one crisis avoided and one more to deal with. Gavin is going on Wednesday to the immunologist in Akron. Something is wrong with his immune system and we need to figure out what the heck is going on. - Lost and Tired Post by Wordpress for Android via Nexus S 4G without the use of proper editing tools and disadvantages of a bastardized version of auto-correct.…

Gavin is getting a bit anxious and is very uncomfortable. They put us in an isolation room because we don't know for sure what it is. I am getting more and more concerned as Gavin continues to present with new symptoms. On the plus side, because I am trying to remain more positive, the more symptoms he has perhaps the better chance we have of identifying what's going on. I'm trying to force myself to be positive, so Gavin doesn't worry and I can keep us all moving forward. I'd be lying to you all if I said it was easy to remain positive because it most definitely isn't. Hopefully we will actually get some answers today and not more questions. - Lost and Tired Post by Wordpress for Android…

Gavin is continuing to get worse. So far this morning he has fallen both up and down the steps at least twice. He has also fallen off the couch and out of chair. The other problem is that he is literally dropping things the moment he picks them up. I don't know what to do anymore. Everything is going down hill quickly or at least that's how it feels. I have been trying to keep Gavin for walking around because he is just hurting himself. It's frustrating for him but I have to keep himself safe. I wish we could get to the bottom of this and figure out what the hell is going on. I can't explain what it feels like to helplessly stand by while your child deteriorates…

We just got a call from the pediatricians office. Apparently Gavin's blood work came back from the gastro. Now we have another problem. His immunogloban (spelling?) G and M are very low. We were told to call Akron Children's Hospital and get in to see the allergist. What the heck does this mean? We can't seem to find anything online about this. We called the allergist and she wants him in on Wednesday morning. Fan-freakin-tastic, another rushed appointment. Remember what I said the other day about we're used to always having the other shoe drop? This is exactly what I mean. We had nothing going on and that was nice for a change. However, the powers that be just don't seem want us to have a break. WTF......it's only Monday…

Today was supposed to be a relatively relaxing day. Emmett and Gavin have therapy this morning, well Emmett already had therapy this morning. Anyway, Gavin slept in as he is prone to do lately. When he woke up he seemed fine. However, from where I was sitting I only saw the right side of his face. Gavin started getting anxious and I wasn't sure why. I asked him if he was OK and he turned to look at me and this is what I saw. What the heck is this? When he came home from grandmas yesterday he had one little red bump on his jaw It just looked like a mosquito bite. However, clearly something has changed as this is definitely a problem much bigger then a simple mosquito…