Gavin's had OT yesterday.  While he was there,  the therapist noticed a new symptom that had escaped our detection. We are very aware of Gavin's movement disorder but had not noticed the tremors.  These appear to be new.  They are possibly a result of the antibody infusion or they could be a new symptom of the,  as of this moment,  unidentified neurological disorder. We spoke with the immunologist this morning and she said that it will be difficult to know whether the infusion caused this or if it's related to the underlying degenerative neurological disorder. Regardless of what the cause is,  this is not a good thing.  Gavin was unable to actually write while at therapy yesterday because of these tremors.  I think that we missed this in part because…

UPDATE: Nathan Carman HAS BEEN FOUND SAFE AND SOUND :-)   Thank you everyone for all your help in spreading the word.  Nathan Carman is missing PLEASE help   Please help find 17-year-old Nathan Carman and bring him home. He has been missing since 7 a.m. Thursday, Aug. 11, 2011, from his Middletown, CT home. Nathan has Asperger's Syndrome, a high-functioning form of autism. He may appear stoic and may or may not respond when his name is called. He was last seen on Thursday afternoon on surveillance cameras as he exited a city bus on the New Haven, CT Green. There have been no sitings of him since then. Please call the Middletown Police at 860-347-2541. Please, let's bring Nathan home to his family.    Here is the link…

What is Occupational Therapy? I wanted to share another video from one of Emmett's Occupational Therapy sessions. This is the Hammock Swing and this is actually the first time Emmett has tolerated this exercise. Basically, this swig provides firm pressure to Emmett's body. The idea is to eventually get him to lay back in the swing and allow more of his body to feel that firm pressure.  However, we have to go at Emmett's pace. If we rush him he will simply shut down and resist any further attempts to work with him on these or any other exercises. Again, please keep in mind that these are geared for Emmett's personal sensory needs and your experience may be different. I hope this helps to give you a better idea of what Occupational Therapy…

Over the past few weeks we have noticed something with Elliott. That something bares a striking resemblance to OCD (obsessive compulsive disorder).  In Elliott's case it has to do with hand washing.  Elliott is very preoccupied with germs and this is relatively new.  We did realize exactly what was going on at first.  Then over the past day or so I started paying closer attention to Elliott's activities throughout the day.  I thought he was going upstairs to play or get a toy but he was going to the bathroom to wash his hands.  I'm completely for good hygiene but not like this. He is constantly washing his hands with hand sanitizer.  Since I have noticed this,  I have very tactfully talked to Elliott about what he is doing.  I…

Elliott's and I camped out again in the living room last night.  He wanted to push the 2 couches together and make a "giant comfy couch".  I suppose that comfy is a relative term but he had lots of fun.  Sometimes all I can do is provide a little comfort wherever I can.  So I was happy to do this again. After all,  they're only kids once.

This is just a random picture I took today while playing around with the camera. Emmett has started with this huge cheesy grin now when taking a picture. He's just 2 cute.......

Elliott absolutely LOVES this song. He walks around the house singing this all the time. Honestly, I like the song and think it's hilarious, especially after seeing the original video.  The song drives Lizze crazy and she hates it with a passion. However, despite her dislike for this song she allows Elliott to sing it to her all the time. Elliott and I have been sitting on the couch and watching this over and over while singing along.. I like that he has developed his own  tastes. He just can't get enough of the Double Rainbow song. He wanted to share this on the blog so all of you could "watch it and be happy". How could I say no to that? Elliott hopes this makes you happy. :-)  Isn't he…