I have been working on one of my little movies I make with videos and pictures from the past few years. However, it's extremely time consuming and time is something that I don't seem to have enough of anymore.  I had this all planned out and I most of the video cut and edited but I just can't seem to finish it. So I thought I would do this instead. I heard this some by Rascal Flatts and it was one of those songs that simply says what I couldn't find the words for. This song I think says what all of us as special needs parents feel for our children. I don't think I could have worded it any better and it always brings tears to my eyes when…

Lizze and I had barely finished our lunch/breakfast and Dr.  Milo was out to see us.  Emmett's surgery went very well and without the hitch that we are so used to accompanying everything in our lives. We are still waiting to go back and see him...  They will call us as soon as he wakes up. While Emmett handles anesthesia very well,  he doesn't wake up happy.  So he will likely be difficult to console and rightfully so. I am soooo grateful that he did so well.  Thanks for all the prayers and support.  One major mountain overcome this week and only 2 more left to go before the weekend. - Lost and Tired Posted by Wordpress for Android via Tegra 2 powered Motorola Photon 4G (provided to me at…

I am fully aware that I have enough on my plate at the moment but I'm trying to kill some time and this has me pretty fired up. A good friend of mine has brought this Facebook page to my attention and we need to get it pulled. The page is entitled, I hate when people make fun of retarded people with Autism. This page owner then puts a picture of someone special needs child with derogatory captions. If you have a child with Autism or other special needs, PLEASE report this page by going to the middle right hand side of the page and clicking the report button. I think I was able to copy the link here. So click right here -----> REPORT   Please Note: The REPORT link…

There's something so heartbreaking with watching your baby walk down the hall with the nurse.  You know that he is going to be operated on and you won't be able to be with him.  The nurse just walked back a few minutes later to let me know that Emmett went to sleep without any problem.  She said he was very brave and wasn't affaid and didn't struggle. That was really,  really good to hear.  I would hate the idea of him struggling with the mask. Just a little price of mind goes a long way.. So now we wait...... - Lost and Tired Posted by Wordpress for Android via Tegra 2 powered Motorola Photon 4G (provided to me at no charge by Sprint) without the use of proper editing tools…

We were called back because it was Emmett's turn to change his clothes.  He had to change into scrubs with snaps.  That didn't go well....at all. He was so upset that he was starting to gag.  The hospital staff was absolutely amazing.  They wanted to know everything they could about how Autism has effected him.  They took so much time trying to help him get comfortable and acclimated with the strange environment.  They walked him through everything until he was okay with it. Emmett struggled with most of the process since the scrubs already pushed him over the edge.  He got to practice breathing through a mask and they let him choose the smell of the gas.  Basically,  he choose a flavor of chapstick and they lined the mask so…

We have arrived on time despite every idiot being on the road at the same time this morning.  Traffic on 77N was horrible and we were very lucky to arrive when we did.  My stomach is in knots right now.  It was weird,  when we were driving up here today,  I felt just as sick as I used when we had to go to court to fight for Gavin.  I hate that feeling,  it's such a helpless feeling.  Emmett is going in for a relatively minor surgery today for a rare condition called PFAPA.  I can't even begin to imagine what parents and kids go through with more serious surgeries for more serious conditions.  My heart truly goes out to them. - Lost and Tired Posted by Wordpress for Android…

Emmett's surgery is scheduled for 2.5 hours from now.  I'd be lying if I said that I wasn't nervous.  I absolutely hate doing this even though it's likely in his best interest.  I say likely in his best interest because no one knows if this will even make a difference for sure.  I've spoken with a few parents that have already been through this with their child and the results were positive.  No one knows what causes PFAPA but this has been shown to reduce the flare ups and the are really no long term issues associated with removing tonsils and adenoids.  Emmett actually slept in this morning for once and is in a really good mood.  I'm gonna ask him if he wants to do his shirt of the…

As I mentioned earlier,  I stayed back today in order to watch Emmett.  Lizze took Gavin to Akron Children's Hospital for his 2nd IgG infusion.  By all accounts it was a success. However,  Gavin had an accident and wet himself so badly that they sent him home in scrubs.  No one is sure what happened there but outside of some concerning movements,  he did really well.  He is currently recovering at Lizze's parents house tonight and tomorrow.  He will likely be home most, if not all,  of this week.  So far it looks as though he will tolerate these infusions well.  This is another big win for him I think.  Great job Gavin,  you never cease to amazed me... - Lost and Tired Posted by Wordpress for Android via Tegra…