Lizze and I have been wondering if maybe she has the same type of immunodeficiency as Gavin. That would explain why she is always sick and was frequently sick as a child.  There is a genetic link to PI (primary immunodeficiency) and Gavin had to get it from somewhere. She actually goes to she her primary care physician this morning and is going to discuss this with her. I'm very interested in what she suggests and I also think it makes sense to look into this a bit further.   It would be nice if we found something that could be addressed.  We coukd finally improve her life, at least in quality. I'm not suggesting that she has PI,  but I do think that it's worth looking into.  As far…

I have mentioned on at least a few occasions,  how Autism can complicate just about every situation imaginable. Please keep in mind that I'm speaking only from my own personal experience.  I don't believe in telling others how to think or feel. Instead I just share my personal experience and knowledge. Emmett just had surgery on Wednesday morning and came home Thursday afternoon.  We went through the same discharge summary that anyone else having a child that had just undergone surgery to remove their tonsils and adenoids would have heard. The only difference being that Emmett is not like most other children. Emmett has Autism and Autism has a nasty little habit of making things more complicated....at least in my experience. We are dealing with that right now. During Emmett's…

I'm really tired so I'm going to make this quick.  The fever is most likely just another flare up of the Marshalls Syndrome. They did note that part of his lung is not expanding but they also said that it's not uncommon to have this after surgery.  However,  there is also concern that this could turn into pneumonia,  so they put him on antibiotics.   Hopefully,  this bout will not last as long. We are gonna head home and hopefully get some sleep.  

The new doctor just came in and told us that the bloodwork and X-rays both look good.  He is going to talk to the ENT and find out what they want to do. At this point it looks unrelated to the surgery,  which is good.  It. Appears to be another one of Emmett's flare ups do to the Marshalls Syndrome (PFAPA or chronic fevers).  The problem,  besides the obvious,  is that we can't give him the Prednisone needed to break the flare up due to the fact that Prednisone can supress the immune system and he just had surgery. We are looking at another 10 days of this fever and all be can do is Tylenol and push fluids. This is going to make recovery much more complicated then it…

Emmett just had his IV placed and blood drawn. He is receiving IV fluids and morphine for the pain. They took X-rays because they are concerned about pneumonia due to aspiration. I'm not sure what his temperature is at the moment but he is really hot to the touch. I can barely keep my eyes open and Lizze is in a great deal of pain.. Emmett just fell asleep watching King of the Hill on NetFlix via his Android4Autism device.  We are waiting for the bloodwork and X-rays to come back. He's lethargic but it's early in the morning and he's recovering from surgery. Hopefully,  we'll have some answers soon.  

Well, Emmett spiked a fever late last night. About 2 or 3 am this morning it had reached 105.2°f. We got more tylenol on board and Emmett into a lukewarm bath. We all fell asleep on the couch watching King of the Hill on Netflix and were awoken around 5am by the return of his fever. We called Akron Children's Hospital and spoke to the doctor on call at his ENT's office. We were told to bring him in immediately....and so here we are. We got everyone dressed and dropped the 2 oldest off at my parents and rushed off to Akron.

Emmett spiked a fever this afternoon. The hospital told us that if his fevers exceed 101f we have to call. Since his fever was 103f, we called the hospital The plan is that if he still has a fever in the morning we will call back and they will call in an anti-biotic to address any possible infection. About an hour ago,  I checked on Emmett and he had spiked a fever of 105.2f. We got him in the bath tub and got some more tylenol in board. We don't know if this is PFAPA related or not. Hopefully, his fever will break and everything will be okay. I can't even see straight right now because I'm so tired - Lost and Tired Posted by Wordpress for Android via Tegra…

Oh yes he did.  Who did what,  you may ask?  Well,  Gavin spit on Elliott.  I don't know what brought that on and frankly,  I don't care.  We do not spit on people. That is completely unacceptable in the Lost and Tired house.  Before you ask,  no,  it wasn't like he was talking and accidentally spit a little bit.  This was actually spitting on his little brother. I'm not saying Elliott was innocent in all of this but he was the spittee and Gavin was the spitter.  Oatmeal was brought back out of retirement because I don't know what else to do in this case.  We don't hit our kids and very little works on Gavin outside of oatmeal.  For those of you wondering what the oatmeal thing is all…